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A MyMSTeam Member asked a question 💭
Rio Rancho, NM

Does anyone jerk or twitch in the middle of the night and it wakes you up?

April 22, 2020
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A MyMSTeam Member

MSF 44 Restless Legs Syndrome (RLS)
I hope this helps.
Symptom: Involuntary rhythmical movements of the trunk, limbs, head and/or vocal cords
Tremor, the most common movement disorder in MS, can be the least treatable and most debilitating symptom of MS.
Other movement disorders seen in MS include: tonic spasms (spasticity), focal dystonia, focal/segmental myoclonus, chorea, parkinsonism and restless leg syndrome.
Treatment
• Referral to PT for balance/coordination exercises;
• Referral to OT for tools; weights on limbs, eating or writing utensils
• Propranolol clonazepam, hydroxyzine, primidone, isoniazid, topiramate, buspirone, ondansetron, gabapentin (evidence is lacking on the efficacy of any medication; however, a number of different agents have been tried)
• Other: Deep brain stimulation may be considered.
I find that these drugs knock me on my ASS and are worse than putting up with (RLS)

Medical marijuana aka MMJ works for me.
I use 1 CBD to 9 THC it takes the edge off of everything.
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April 22, 2020
A MyMSTeam Member

Yep on 1mg ropinorole that i take late afternoon,works wonders and not pot or barbiturate based . Has really impressed me with the effectiveness of such a small dose.

April 22, 2020
A MyMSTeam Member

Add me to the jerking list sometimes it's bad expectly if I have over done it.

April 24, 2020
A MyMSTeam Member

OMG! This has been so bad with me! Keeps me up at night - along with my bladder! Still do not have a dx of MS but have an appt with a Neuro who specializes so hopefully he will listen! Says my "jerks" are hypnic jerks as in just falling asleep! Not sure how it can happen during the day or middle of night but that's his response! Hence, I am not going back to him! $400 to be told I have Myasthenia Gravis because of double vision 🙄

April 22, 2020

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