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A MyMSTeam Member asked a question 💭
Sacramento, CA

How do I get info on these treatments here in the USA? And how do I begin the process? I have tried and failed numerous times to bring this up with a number of doctors, and have been shot down every time with comments ranging from “we don’t do that kind of thing here” to a full on outburst full of rather racist comments about “shit hole” countries and “snake oil salesmen” I am a Canadian person living in the USA (permanent resident) and I know for a fact that these treatments have been showing… read more

August 6, 2020
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A MyMSTeam Member

Reading between the lines of your question and what you've written in your profile it sounds like you've come down with MS and expect the cavalry to arrive to help. I'm sure most on here can relate to that and have been disappointed with the reality that ultimately few people actually care and you're largely on your own.
Not all stem cell treatments are specific to MS, in the US and the UK they only do clinical trials which you have to be invited to participate in.
Some other countries do a procedure called HSCT as a paid treatment costing around 50,000 bucks or more. Nobody has ever been cured as a result of the treatment and 1 in 75 die as a result of that treatment. This is why you get comments like snake oil salesman etc, it's effectively giving people false hope whilst robbing their bank account.
Some who have had the procedure will swear by it but the reality is they still have MS and at best have a temporary improvement in symptoms. Whether that's as a result of the treatment or their mind has a positive psychosomatic reaction is debatable.
Bottom line is there's no quick fixes and no cavalry coming !

August 7, 2020 (edited)
A MyMSTeam Member

there are a few clinics on offer from mexico/usa, people I have corresponded with tell of varying results with the majority reporting the positive results wore off at around 3 year mark. This is interesting reading though https://stemcellofamerica.com/

August 7, 2020
A MyMSTeam Member

There's a place I talked to in San Diego a few years ago. I did a web search for stem cell therapy. When she explained the procedure, I was nauseated, so put it out of my mind.

August 6, 2020
MyMSTeam

Certainly! Here is a detailed article on stem cells based on the information from the knowledge base:

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Stem Cell Treatment for Multiple Sclerosis

Introduction to Stem Cells
Stem cells are unique cells with the ability to self-regenerate and differentiate into various specialized cell types. They play a crucial role Show Full Answer

Certainly! Here is a detailed article on stem cells based on the information from the knowledge base:

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Stem Cell Treatment for Multiple Sclerosis

Introduction to Stem Cells:
Stem cells are unique cells with the ability to self-regenerate and differentiate into various specialized cell types. They play a crucial role in the body's ability to repair itself. There are different types of stem cells, each with distinct characteristics and potential uses.

Types of Stem Cells:

1. Embryonic Stem Cells:
- Characteristics: Present in the early embryo phase, these cells are pluripotent, meaning they can become any cell type in the body.
- Self-Renewing: They can replicate themselves, making them a valuable resource for regenerative medicine.

2. Somatic (Adult) Stem Cells:
- Characteristics: Found throughout our lives in specific tissues or organs, these cells mature into certain cell types.
- Examples: Skin stem cells, which can only become skin cells.

3. Mesenchymal Stem Cells (MSCs):
- Characteristics: Found throughout the body, MSCs can become bone, fat, or other tissues.
- Function: They help other stem cells function properly and can influence the immune system.

4. Neural Stem Cells (NSCs):
- Role: Vital in repairing myelin in the brain, which is crucial for preventing progressive disability in multiple sclerosis (MS).

5. Induced Pluripotent Stem Cells (iPSCs):
- Characteristics: Engineered from adult somatic cells and reprogrammed to become pluripotent.
- Current Use: Primarily in research settings.

Stem Cell Transplantation in Multiple Sclerosis:

Stem cell transplantation has shown promise in treating multiple sclerosis (MS). One notable case is that of Selma Blair, whose life was significantly impacted by this treatment.

Key Facts About Stem Cell Transplantation:

1. Hope for Lasting Results:
- Stem cell transplantation offers hope for lasting remission in MS patients, although it is recommended primarily within clinical trials.

2. Types of Stem Cell Transplants:
- Hematopoietic Stem Cell Transplantation (HSCT): This involves using blood stem cells to reboot the immune system, which can be beneficial for MS therapy.

3. Clinical Trials and Research:
- Ongoing studies are comparing HSCT to other therapies for active relapsing MS, highlighting the importance of clinical trials in advancing treatment options.

Conclusion:

Stem cell therapy holds significant potential for treating multiple sclerosis, offering hope for improved outcomes and quality of life. However, it is essential to approach these treatments within the framework of clinical trials to ensure safety and efficacy.

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This article provides a comprehensive overview of stem cells and their application in treating multiple sclerosis, based on the information from the knowledge base.

July 16, 2024
A MyMSTeam Member

Look I asked my neurologist about this (& even had a family member willing to pay for it!) He flat out told me he didn’t think it was a good idea.... that they were just not there yet & it wasn’t proven to be effective (yet.)

My advice? See a MS specialist & pay out of pocket if need be. Then ask them what top treatments they would recommend in your case & why. Or ask them what they think about the stem cell treatments.

⭐️Btw congrats on becoming a permeant resident here in our crazy country. My x-husband became a permanent resident, so I know all the effort, hoops and money it takes to get you there. Immigrants are what makes America a better nation. Welcome!

August 8, 2020

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A MyMSTeam Member asked a question 💭
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