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Optic Neuritis - Vision Loss Worse :(

A MyMSTeam Member asked a question 💭
Hayward, CA

Its been a month since what started as a light pressure on my eye became blurry vision loss..” optic nueritis “
I was hospitalized for 3 days, IV steriod Treatments 1x a day. Discharged , vision never really got any better really.. but it has gotten worse, HAS ANYONE LOST VISION COMPLETLY IN ONE EYE ?? Idk what to do
This is sooooooo terrifying uncomfortable :(

September 22, 2020
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A MyMSTeam Member

Yes I have had Optic Neuritis 34 years ago and then I got the wonderful Diagnosis of it being MS...Long story short short, I will soon start Ocrevus infusions in 2 months...:)

September 24, 2020
A MyMSTeam Member

Hi Jessica 🙂
I lost the vision in my right eye completely too and had the same treatment 3 days of IV steriods
Don’t give up yet !!!
It took 6 weeks for my vision to come back and I think the more relaxed you can be is helpful ... light really hurt mine so I kept things dark or wore sunglasses and listened to positive audibles ☺️
Warrior prayers 🙏🏻

September 22, 2020
A MyMSTeam Member

I didn't lose complete vision in my eyes but everything is blurry and out of focus....i have very expensive lens for my glasses now just to keep my eyes focused without them i cant see really anything

September 30, 2020
A MyMSTeam Member

The more time that passes the less i can help but to worry and begin to kind
Of freak out!

Its so scary :(
Its limited my ability to drive, read, or watch tv.. it affects every part of life...

September 30, 2020
A MyMSTeam Member

I was diagnosed in 2019 with Optic Neuritis in my right eye was in the hospital twice, I was told don’t worry your sight will definitely return, it’s been over a 1 year and I still cannot see clearly from that eye. When I had my zoom appointment w/the neurologist and told him I still cannot see clearly out that eye, he said well if it’s not back yet, then that’s it it won’t come back. SMH, I’m looking for a new neurologist.

September 29, 2020

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