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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hearing Issues

Hearing Issues

I'm having an issue with hearing primarily in my left ear but has happened a few times in my right ear. It starts as kind of a weird fluttery feeling in the ear then complete silence in the ear. It deafness doesn't last more than 5 or 10 minutes but is gradually increasing in frequency. Does anyone else have an issue like this or heard of anything similar? TIA

posted November 18, 2020
A MyMSTeam Member

@A MyMSTeam Member I highly recommend you go see an ENT Ear Nose and Throat specialist to figure out what might be going on. Your neurologist won’t be able to do it because that’s not their expertise. I go to my ENT for GERD and Crohn’s disease.

posted November 23, 2020
A MyMSTeam Member

I suffer from hearing issues all the time. Mine are sinus issues. Plus I live at about 1600+ feet elevation, so my ears are constantly plugging,popping,... I think I might have termites, I see floaters in my vision daily. I do sometimes feel a swish sound and then all goes silent, then a high pitch sequel sound, then my hearing comes back.
Not sure what causes it, I think it has to do with environment, age, maybe MS. I wish you peace and success with your search for an answer.

posted November 20, 2020
A MyMSTeam Member

I have had horrible tinnitus for a long time that became significantly worse post optic neuritis, with eventually over a dozen different tones. My ears were often painful from lying on them when I woke up in the morning. ENT tested me and said my hearing was 100% and I'd just need to learn to live with the tinnitus. Then this February in a CranialSacral session, the practitioner gently applied pressure on my abdomen and my jaw cracked audibly! Since then I have only two tones left and they are sporadic, not constant. All this to say, don't give up hope! I use helichrysum essential oil which helps with drainage - so it definitely seems to be sinus, vagus nerve, jaw alignment issue for me. Hope you find your solution soon - I know how horrible it can be! It was so bad for me at one time I had to rely on reading lips to really hear a conversation well. XX

posted November 27, 2020
A MyMSTeam Member

I’d get in touch with the doctor who’s treating or monitoring your MS! Asap! Some doctors believe that new symptoms can be treated effectually and that permanent damage can be headed off. I wouldn’t waste time with that one!

posted November 18, 2020
A MyMSTeam Member

Yep, tinnitus in the ears makes it hard to hear certain tones. And if I go out and there is loud noise, crowds, whatever; everything will overwhelm my hearing. It can actually get painful. I finally started carrying earplugs for that situation.

posted November 18, 2020

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