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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Rebif Fatigue

Rebif Fatigue

Hello. I hadcto come off gileyna due to fungal pneumonia. Started on rebif rebidose titration pack last Sunday night. I've had 3 doses so far. Since the 3rd dose. Ive been feeling tired and breathless/short of breath upon exertion. And little exertion at that. And light headed.

Anyone else here on Rebif experience thst upon starting? I was in Rebif about 10yrs. ago. Im thinking this may have been an issue then. Can't quite recall.
Thanks
Van

posted almost 2 years ago
A MyMSTeam Member said:

Happy New year to you also.
I was on Rebif for 1yr.. I must tell you I have been on many of the drugs for MS. Luckly I have tolerated them all nicely.
I remember trying a new med. and being excited to have one I was not injecting everyday. Not injecting everyday was a goal taking the Rebif. Normal sideffects with each. Rebif I did experience flushing and a faster heart beat.Nothing more that I remember.
K...πŸ˜·πŸ€”πŸ™‚

posted almost 2 years ago
A MyMSTeam Member said:

Oh ya I get what your putting down. I've been on rebif for 3 months now. Before coleys shots for cancer . From my understanding is it fires up our immunity looking for invaders. Healing the body at the same time . Flu like symptoms. Ive found Myers infusion works wounderful. It's vitamins. Also as soon as I get my injection I go for a walk maybe picking up trash . Along the way . Something active . It helps from feeling like shit . Juicing real food . Green drinks and yes cool coffee enemas! That's right look into it . Go from im wanting to die feeling to wow let's go feel great . Drink clean water filter even your tap. And limit coffee drinking . You'll notice this little tweeking of habits .my moto. "TO FEEL BETTER .. WE NEED TO EAT WHAT WE DONT LIKE (VEGETABLES ) DRINK WHAT WE DONT LIKE "JUICING CLEAN WATER NO COFFEE " AND DO THE UNTHINKABLE .. ENEMAS! NEED TO CLEAN THE POISON OUT OF COLON BEFORE IT REABSORB. YOULL FEEL BETTER .

posted 8 months ago
A MyMSTeam Member said:

Yes, I am on Rebiff. I found that with Rebiff, you have to be super hydrated to minimize the side effects. I try to drink over 60-85 oz. of water a day and that seems to help. I mostly get headaches and chills....no fatigue. Hope this helps a little. πŸ˜ŠπŸ’–

posted almost 2 years ago
A MyMSTeam Member said:

I don’t know anything about been on Gilenya for several years now. But I do think you need to call your neurologist and let them know. It doesn’t sound right to me.

posted almost 2 years ago
A MyMSTeam Member said:

Any antidepressants can harm

posted almost 2 years ago
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