Hello. I hadcto come off gileyna due to fungal pneumonia. Started on rebif rebidose titration pack last Sunday night. I've had 3 doses so far. Since the 3rd dose. Ive been feeling tired and breathless/short of breath upon exertion. And little exertion at that. And light headed.
Anyone else here on Rebif experience thst upon starting? I was in Rebif about 10yrs. ago. Im thinking this may have been an issue then. Can't quite recall.
Thanks
Van
Happy New year to you also.
I was on Rebif for 1yr.. I must tell you I have been on many of the drugs for MS. Luckly I have tolerated them all nicely.
I remember trying a new med. and being excited to have one I was not injecting everyday. Not injecting everyday was a goal taking the Rebif. Normal sideffects with each. Rebif I did experience flushing and a faster heart beat.Nothing more that I remember.
K...π·π€π
Oh ya I get what your putting down. I've been on rebif for 3 months now. Before coleys shots for cancer . From my understanding is it fires up our immunity looking for invaders. Healing the body at the same time . Flu like symptoms. Ive found Myers infusion works wounderful. It's vitamins. Also as soon as I get my injection I go for a walk maybe picking up trash . Along the way . Something active . It helps from feeling like shit . Juicing real food . Green drinks and yes cool coffee enemas! That's right look into it . Go from im wanting to die feeling to wow let's go feel great . Drink clean water filter even your tap. And limit coffee drinking . You'll notice this little tweeking of habits .my moto. "TO FEEL BETTER .. WE NEED TO EAT WHAT WE DONT LIKE (VEGETABLES ) DRINK WHAT WE DONT LIKE "JUICING CLEAN WATER NO COFFEE " AND DO THE UNTHINKABLE .. ENEMAS! NEED TO CLEAN THE POISON OUT OF COLON BEFORE IT REABSORB. YOULL FEEL BETTER .
Yes, I am on Rebiff. I found that with Rebiff, you have to be super hydrated to minimize the side effects. I try to drink over 60-85 oz. of water a day and that seems to help. I mostly get headaches and chills....no fatigue. Hope this helps a little. ππ
I donβt know anything about been on Gilenya for several years now. But I do think you need to call your neurologist and let them know. It doesnβt sound right to me.
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