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A MyMSTeam Member asked a question 💭
Tucson, AZ

Sometimes (especially after I've done some exercise) my lower leg muscles will feel like they are squeezing (my toes will even curl) and then I have an intense burning sensation. The burning is incredibly painful but lasts less than a minute. If I reposition my legs and hold still it will usually go away. Is this common in MS? (I was diagnosed 18 months ago, 56 years old, multiple brain lesions, mild symptoms so far and doc thinks I've had it for years based on the number of brain lesions.)

January 30, 2021
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A MyMSTeam Member

Sorry you're feeling so poorly. You should call your doctor(s) about this because there are things that can be done.

> Sometimes (especially after I've done some exercise)...

First, one caveat. Don't let this be an excuse to not exercise. Exercise is critical to battling this disease. But back to the issue.

Pain is typically from either muscle spasms (sounds like the curled toes thing) or from nerves -- or both. There are two different classes of medicine to deal with this so getting a doctor involved is required to get the right prescriptions.

You don't say what medicines you presently use but it sounds to this non-MD that Baclofen may be called for to ease up on spasms.

> Is this common in MS?

Quite common. Again, there are medicines to deal with these issues and with some help you can be feeling much better.

The multiple lesions are also common -- the literal definition is *multiple* sclerosis/scarring/lesions. (If you only had 1 lesion you wouldn't have MS.)

January 30, 2021 (edited)
A MyMSTeam Member

I also have multiple brain lesions and have off and on pains or issues 🤷🏻‍♀️💕I was DX 10 years ago

February 2, 2021
MyMSTeam

It sounds like you might be experiencing neuropathic pain, which is common in multiple sclerosis (MS). This type of pain can feel like burning, stabbing, or pins-and-needles sensations. It can be chronic or occur in short, intense bursts. The squeezing sensation might be related to spasticity or muscle spasms, which are Show Full Answer

It sounds like you might be experiencing neuropathic pain, which is common in multiple sclerosis (MS). This type of pain can feel like burning, stabbing, or pins-and-needles sensations. It can be chronic or occur in short, intense bursts. The squeezing sensation might be related to spasticity or muscle spasms, which are also common in MS.

Here are some common descriptions of MS-related sensations:
- Burning
- Stabbing
- Pins and needles
- Tingling
- Squeezing

If these symptoms persist or worsen, it's important to discuss them with your healthcare provider to find appropriate management strategies.

July 13, 2024
A MyMSTeam Member

> and will bring up these symptoms to her.

That's a must-do. As shocking as these symptoms are to you, they're actually quite common with the disease. The medicines typically prescribed for these issues are Baclofen and Gabapentin (though there are others).

January 31, 2021
A MyMSTeam Member

Thanks so much for the information. I am under the care of a doctor and will bring up these symptoms to her. I just wanted to reach out to others and see if this is a common MS-thing. It is a new symptom for me.

January 30, 2021

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