Meds Aside From Copaxone That Are Recommended.
I’ve been on copaxone for years now. No relapses since beginning so it’s definitely working well. I like how there are no side effects in regards to feeling flu’ish etc because I work full time and very active so it’s caused no life style interference. However, I’ve begun to get those permanent indentations mainly on my thighs and the bruising has become terrible. I truly look like a junky with track marks that won’t go away along with massive welps under my skin for weeks in every place I shoot… read more
I was on Copaxone for 13 years then it stopped working. I have been on Rituxan for 6 1/2 years with no new lesions. Ocrevus is the same as Rituxan but 6 1/2 years ago Europe was giving it and my Insurance company fought it every 6 months for my treatment. Rituxan is $1,500.00 per infusion, Ocrevus is $15,000.00 per infusion and the Insurance company asks him (pleads) will you use Rituxan. Of course. My Neurologist goes to Europe every year because there clinical trials are thousands of patients for several years not like the U.S where they follow 402 patients for 2-3 years. I did try several others in between and Nothing was as easy and effective for me. I have kept a Health Diary since the day I was diagnosed and can always look back and say to my neurologist what worked and what didn’t. I need to put up a new video and my channel about that. As always, MSisBS
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Hi , Had interferon ,copaxone now am on gilenya (once a day pill) and love never seeing another needle. Seems to work for me
I took Copaxone injections a long time ago. Didn’t end up working for me. I switched to an infusion every 4 weeks.
I started on copaxone but it didn't work well for me (11 months). Been on tecfidera ever since (6 years) and it works great - no new MS activity while I've been on it. There are some side effects, but I've found ways to mitigate them all. Happy to chat more about it if that's helpful! 🧡
I read about other treatments. I can't take them due to a compromised liver. So since Copaxone is the safest, I stay on it. Read the side effects. That's what I've done. Mavenclad was one that was recommended to me too. I had hepatitis for years. Even though I don't have it anymore, and my liver is back to normal, I don't press my luck. Sometimes neurologist don't really REMEMBER everything about your medical history. ( they are only human) so it's important to weigh the pros and cons,and read carefully about all the side effects. After all, since the liver is the largest organ in my body, I need to be kind to it.
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