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I recently met my potential new neurologist and she had me tested for jcv and my results came back positive. My potential new neurologist is working in locum and not available to discuss and why I am asking here. What have your experiences been if tested positive for jcv and continuing to take tecfidera or should I plan on getting on another treatment plan. Thank you for your time.
Update: my neurologist finally called me back and said that they will test me again in January to see if the level has changed and we will be discussing other ms treatment options.
John Cunningham? Virus. From what I know it's a common virus that on its own has no impact but if you are taking an immunosuppressive drug it can cause a brain infection which could result in significant damage or death.
What is JVC?
Welcome Joie! Glad you found the site and decided to join us.
I don't know what the risks are specifically for tecfidera (I've never been on that DMT). I do know you can be monitored periodically for what your JCV "level" (or whatever) is.
FWIW, this video may be informative:
https://www.youtube.com/watch?v=nMVmJh12SZA
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