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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Have Dizziness When They Stand Followed By Tremors?

Anyone Have Dizziness When They Stand Followed By Tremors?

I haven’t been dx’d but have been dealing with dizziness for the last 6 months. It happens when I get up from my desk and walk to the kitchen. So it’s about 30 seconds from the time I stand. As the “almost fainting” episode would peak, start to pass, I noticed right hand tremors, slight but noticeable to me, as I held my water bottle to get a refill.

Today it happened and the hand tremor was more severe. I sat the bottle on the counter because I was going to drop it or slosh water all over if… read more

posted December 21, 2021
A MyMSTeam Member

@A MyMSTeam Member Yes, most of it familiar. Celia, I am 72, had the first signs of MS when I was 21, diagnosed at 23. Now my relapsing/remitting MS has become secondary progressive without flairs, and so read about my experience with the differences between us in mind: MS has caused me some internal problems. Constipation is one of them. I was straining to poop. I experienced light-headedness and dizziness and felt like I might pass out when I was walking out of the bathroom (with grab bars in both sides of me), and my hands and my whole arms would be shaking. I thought that all might be signs I had developed a heart condition. I told my GI doctor and my MS Center Neurologist about it. The GI department didn’t react. My Neurologist did, and he referred me to Cardiology. So in February I had a full Cardiology work-up, with what sounds like the same heart monitor as you, an Echo Cardiogram, another EKG. All my results were normal, the Cardiologist wished me well, but said I didn’t need a Cardiologist, and there you go. So after a heart condition was eliminated, I re-started working out, sought another GI facility’s opinion, and followed all the suggestions I got from the GI department I was already being treated at, and let that GI department refer me to Pelvic Physiology, which did a full testing in April, and found soecificcnerves that were damaged, probably because of MS, which explained why I needed to strain. I even had a course of Pelvic Physical Therapy. I got close to stopping the straining to poop, and all that light-headedness and shaking went away. I’m still terribly constipated, but I have learned a few tricks and have scheduled and further tries to improve things, and I’m convinced that I caused those unpleasant symptoms by straining and being scared, but that MS as well as some personal structural peculiarities have caused the situation.
I’d love hearing how your situation turns out!

posted December 21, 2021
A MyMSTeam Member

Without a diagnosis I suspect a number of neurological conditions could be to blame if not something more. I would definitely push for testing of all possible culprits. A misdiagnosis may be just as pernicious as a non-diagnosis, I'd imagine. I hope you get the attention you deserve from a good healthcare team so you can address the root cause and I hope you feel better soon!

posted December 22, 2021 (edited)
A MyMSTeam Member

go to hospital

posted December 21, 2021
A MyMSTeam Member

Sounds like orthostatic hypotension. Lifestyle changes can be effective, such as using extra salt, pressure stockings, and awareness - pause when standing before walking.

posted December 25, 2021
A MyMSTeam Member

Yes I can restless legs and my legs just move everywhere. it is very annoying and drives me nuts. I have it right now.
MS does all kinds of weird things to you body.

my heart goes out to you and everyone else wit MS

Ruth

But have a Very
Merry Christmas

Ruth

posted December 22, 2021

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