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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Did You Decide On The Medication To Treat Your MS?

A MyMSTeam Member asked a question 💭
Fargo, ND

Happy Wednesday everyone! I hope your day is going well. :)

When you were diagnosed with MS, what was the deciding factor on the medication you chose? Have you changed medications? If so, what made you decide to change? With the medication you are on now, have you had relapses ?

March 9, 2022
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A MyMSTeam Member

They had a hard time finding something I could take. I was about to give up. Luckly the Ocrevus is working really well.

March 9, 2022
A MyMSTeam Member

I wasn't given any options, I was TOLD that basically THEY would be starting me AVONEX and to find a PAY for because, at rhat time, the VA didn't pay for it. 🤔 Was referred to a program called ACCESS, who paid for it until someone, I can't remember off hand, told me that the VA was supposed to pay for, they started paying. 🤔 Almost 10 years later I was asked about the side effects, which I was still having, should've stopped after about 6 months or so, they didn't, so I DID!!! 🤬 Now they're mad about this, so what...? 😂 END OF STORY...? 🤫

March 12
A MyMSTeam Member

Was diagnosed at age 39 now 75
Have been on almost every med for ms thought I was doing it to stop progression but I have progressed anyway who knows to what extent
Now my main motivation for staying on DMT is hopes to avoid Dementia so far so good 😉

March 10
A MyMSTeam Member

I was diagnosed at age 47, I'm 61 now, used Avonex for over 8 years, STOPPED myself and have been AVONEX free now for about 5 years now and NY doctors didn't like that. 🤔 So...? 😂 I am doing GREAT without it, I'm not saying that I'm cured, I know that I have that MS but it doesn't have me. 😊 I'm saying thises things because I know my body, I know how and what I feel, doctors, nurses or neurologists DON'T. 🤬 I have the BEST support team in the world, with them I've learned a lot about MS, myself and others with this disease. ❤️

March 10
A MyMSTeam Member

Kelsey B, Dx was in mid 1950s. (69 yrs!)No tx or good diag. tools available. MRI in early. 90s (?) Confirmed(brain lesions) just started on Kesimpta last month . Feeling better! No MRI yet to ck. lestons. Hoping to slow any progression. Very minimal! After69 yrs, fortunately!

May 21, 2024

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