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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question ๐Ÿ’ญ
Hattiesburg, MS

So I'm almost 62 years old and I take Ocrevus for my MS. my neurologist said he had good news for me....if I make it to age 65 I'll have "beat MS". Has anyone else been told this?? Seems coincidental that at 65 I go on Medicare, which wont pay for my medication or any MS disease modifiers

February 2, 2023
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Answer Summary

Members pushed back on the idea of 'beating MS' at age 65, with many suspecting the comment was tied to Medicare not covering MS... Read more

Members pushed back on the idea of 'beating MS' at age 65, with many suspecting the comment was tied to Medicare not covering MS disease-modifying therapies rather than any true medical milestone. Several members shared that their neurologists confirmed there is no cure for MS, and many expressed a strong desire to stay on their current medications, like Ocrevus and Tysabri, after seeing major improvements in their functioning. A recurring theme was self-advocacy, with members reminding each other that MS affects everyone differently and that individuals should not let a general age-based guideline drive their personal treatment decisions.

A MyMSTeam Member

MS doesn't go away it will just go to sleep for awhile and hit you when you are not expecting.

February 4, 2023
A MyMSTeam Member

I would take that advice very lightly. There are some scientific papers that state some individuals as they age MAY appear to have some MS burnout - symptoms may seem lessened. MS is a lifelong chronic illness without a cure. Each individual must look at their own situation and what treatment is best for their medical situation. Personally, I would continue my medication as I believe it has allowed me to live my life with minimal MS complications.

February 4, 2023
A MyMSTeam Member

I am living with MS since I was 17 years old and am now 67! Actually I recently came across Taopatch which has helped my balance and walking. I didn't think I would live this long so I'm happy with however long I have

August 21, 2024
A MyMSTeam Member

How did he determine 65? He doesn't know as hasn't done any special tests on you. He is coming up with a number they are testing in clinical trials that have the possibility of stopping medications. You are an individual and shouldn't consider yourself the same as everyone. Just a word of caution. For example, have heard before most people are in a WC 10-20 years after diagnosis, 33 years later I'm not there yet. HCP are not "GOD" and don't know all but like to portray they do. You're your best advocate.

August 21, 2024
A MyMSTeam Member

I was diagnosed at age 64 MS, my second neurologist said I did not need to go on MS meds. Dec 22 got a new neurologist he did a series of test. Jan 2023 put on zeposia. I am doing great. Had more test he said ms in remission. I am on Medicare and my meds paid for. My doctor had to justify for the meds and was approved.

August 13, 2024

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