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I'm with Kaiser. He's my pain medication doctor and a very good doctor. I was having a lot of pain in my back 10 years ago and even before that. I've had many MRI's over the years. I had 3 herniated disc's in my lower lumbar. And I had spondylosis in my neck. He said I had decongenitive disc disease. I was also experiencing electrical shocks, pain, numbness and weakness in my arms and hands. Then 5 years ago I experienced pain in my left hip. Which was bursitis. 2 years ago I complained to him… read more

May 9, 2023
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A MyMSTeam Member

Take a look at this…
I needed to go to my Eye Dr soon after I was dx'd in '05. Since was a new patient, had to enter my information on some papers. I was new at this, so I did not mention the MS, nor did anyone there know. During my eye exam the Doc started getting REALLY CONCERNED. He started asking me questions, but kept the appointment going. Towards the end he was like
"why don't you have a seat". I looked at him and "that bad, eh?" He then asked,
"Did you know you have MS?" I was like,
"um, ok, you're good, and yes". He then calmed down immediately and was like, "it wasn't listed on your papers". I was like,
"it is too new for me,
so l didn't know what to say.
99
The RIGHT EYE DOCTOR is capable of seeing it too.
An Ophthalmologist is trained to see things like this.

https://www.aao.org/eye-health/tips-prevention/...

May 10, 2023 (edited)
A MyMSTeam Member

The only way you are really going to get diagnosed is through a neurologist. I would see at least one neurologist, and two if you can (for a second opinion). No other specialist is going to know much about MS.

The best type of neurologist to see is an MS specialist. They may or may not have them available at Kaiser but you can try getting a referral from your neurologist to an MS center at an academic institution.

In many cases, MRIs of the brain and spine, combined with a neurological exam and patient history will be enough to diagnose MS. My MRIs showed the presence of lesions and demyelinating disease. Some doctors might also order a spinal tap (I had one) but it isn't necessary in all cases. Doctors will also often run blood tests and consult with other specialists to ensure that they can exclude other medical conditions. There are in fact many medical conditions that mimic symptoms of MS. It sounds like you have several other medical conditions, some of which could explain some of your symptoms, but you would need confirmation from a neurologist that your symptoms are caused by either MS or a different neurological disorder.

May 11, 2023 (edited)
A MyMSTeam Member

Honestly I do not. As the post says ONLY AN Ophthalmologist would be trained to see the signs to look for.
Wishing you the Best!!

May 10, 2023 (edited)
A MyMSTeam Member

Has he ever done a spinal tap? That's how they finally diagnosed my MS.

May 9, 2023
A MyMSTeam Member

MiaLang you have definitely been through the wringer! Thanks for sharing this, but it goes to show “SELF ADVOCACY” IS IMPORTANT
There are a variety of issues it could be and you being basically ignored is very unprofessional of a DOCTOR.

I COMMEND YOU!!

May 11, 2023

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