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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 4, 2023
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Answer Summary

Members opened up about the painful reality of family and friends who struggle to accept or understand their MS diagnosis, with many sharing... Read more

Members opened up about the painful reality of family and friends who struggle to accept or understand their MS diagnosis, with many sharing stories of loved ones who dismiss their symptoms as exaggerated, attribute everything to old age, or remain in denial because the illness is often invisible. Several members described cutting toxic or unsupportive people from their circles entirely, while others shared strategies for educating skeptical family members through appointment attendance, patient explanations, and waiting for a serious relapse to make the condition undeniable. A recurring theme was the importance of surrounding yourself with people who believe and support you, leaning on the community for validation, and refusing to waste energy on those who cannot or will not understand what living with MS truly means.

A MyMSTeam Member

Toxic people will make you feel worse, and can even cause demyelinating events. No, my family fully supports me, and I never complain about my MS because I feel so fortunate that I'm not worse, and that I have these wonderful people in my life. Surround yourself with people who love and support you, and vice versa❤️

June 4, 2023
A MyMSTeam Member

If someone in my family complains about it they would not be in my family any more, so far no one has said anything.🙂

June 4, 2023
A MyMSTeam Member

I’ve been fortunate to have supportive friends and family. MyMSTeam friends are great too. They understand with no explanation needed.

June 5, 2023
A MyMSTeam Member

My immediate family is very small and they don’t have a problem. When I was working the only people I told were my bosses in case I had problems. Luckily I didn’t. And a couple friends also knew, and they understood I didn’t want lots of people to know. They didn’t constantly ask me about it, which was good, too. I am exceptionally lucky with my ‘family’.

June 4, 2023
A MyMSTeam Member

My ex, but she’s not in my circle anymore. I devorced her.

June 4, 2023

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