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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 28, 2023
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Answer Summary

Members responded to questions about MS drug options for SPMS with many sharing their personal experiences with Ocrevus, which was the most... Read more

Members responded to questions about MS drug options for SPMS with many sharing their personal experiences with Ocrevus, which was the most commonly mentioned treatment. Several members described mixed results, with some noticing improved feeling in their limbs and slowed progression, while others felt little benefit or faced challenges like increased infection vulnerability or cost, with one member switching to Kesimpta for affordability. A recurring theme was that each person's MS journey is unique, and members encouraged one another with resources like YouTube channels from MS doctors Aaron Boster and Brandon Beaber for learning more about treatment options.

A MyMSTeam Member

I was on Ocrevus for 3 years. I thought it was a good drug.

August 29, 2023
A MyMSTeam Member

I'm also on ocrevus was on rituxin. I wasn't able to tolerate rituxin because I had an allergy reponse, itchy ears, neck, and chest with hives, swelling of my tongue and back of my throat. Both have prevented progression of my MS and allowed my body to heal itself. I was almost in a wheel chair full time, then I used a walker/wheel chair as needed, then just my walker to now using a cane outside of the house. I still have spasticity as well as pins and needles in my hands and feet. When presented with stress the old damage from optic neuritis acts up, visional changes to temporary blindness in one eye. We are all on our own journey. MS doctor Aaron Boster has a youtube channel. His videos are very informative and he covers discussions of MS treatments in details in ways that I understand. MS doctor Brandon Beaber also has a youtube channel discussing these topics, however they are very technical with statistics, I find them to be helpful but sometimes above my head. My neurologist isn't the best. She treating me as if I just developed this disease 3 years ago knowing I had symptoms going back 10+ years ago. I have other health issues that can mimic MS symptoms, hypothyroidism, hypoparathyroidism, and hypocalcimic. Understanding how MS works being low in calcium& vitamin D definitely caused MS flares and complications. Hugs, praying for blessings and healing during your MS journey.

August 29, 2023
A MyMSTeam Member

I'm on Ocrevus for SPMS and it's working great 👍 I used to be numb a lot but now my feeling in my legs and arms have been better.

August 28, 2023
A MyMSTeam Member

@A MyMSTeam Member Sorry to hear about your white blood cells. You bring us so much joy with your posts! Blessings for you, my dear friend!

September 9, 2023
A MyMSTeam Member

I have SPMS, am on the Ocrevus infusions.. it makes me more vulnerable to infections, so, am leary of bacteria.. but, otherwise.. doing fine.. get the next MRI in October

August 29, 2023

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