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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 12, 2024
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A MyMSTeam Member

Baclofen helps me with direct open nerve pain. Like an open nerve in your teeth, ..I was taking gabapentin, n went to pregablin, which has been very affective for me. I am not a neurologist, but sometimes we take too many of the same kind of drug. You can also talk to your pharmacy on mixing drugs. Flare ups happen, generally dissipating n not remaining a permanent disability. These are my ideas..your new Neurologist will be able to direct you...have a really good day

January 13, 2024
A MyMSTeam Member

I went to bed, I woke up the next morning and it fell like someone was stabbing me in the head with an ice pic, Excruciating horrible pain. I could not get into my neurologist for a few weeks, So I had to sleep sitting up on the sofa and watching every move I made. When I got there, he confirmed it was TN. He started on 1200 mg Gabapentin, 300mg every 6 hours. My savior! The drug that is. It's been 7-8 years and I'm "stab-free". MS since 2000. So I have MS, TN, IBS, OCD, PMS, haha, just MS n TN for me.

This is my joke to all this crap, yes I find it funny 😁...

Multiple Sclerosis is known as a snowflake disease. Trigeminal Neuralgia is known as the suicide disease. Does that mean I'm a suicidal snowflake??

January 12, 2024
A MyMSTeam Member

Thx

January 14, 2024
A MyMSTeam Member

I’ve had it since pre diagnosis of MS
I got a mouthpiece from my dentist which led to an open bite
I find stress is a big trigger for me as well as concentrating as it causes me to clench facial muscles- I often put heat on my check ear to try and relax the muscles
Gabapentin for the nerves

January 14, 2024
A MyMSTeam Member

I've had this about 15years. Ampisol has become my best friend. Gampentin.helps

January 13, 2024

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