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A MyMSTeam Member asked a question 💭
Oshkosh, WI

I'm looking into getting a cooling vest. Do any of you have any suggestions or tips?

June 22, 2024
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A MyMSTeam Member

I've used a cooling vest since 2005 and at that time it was only needed in the summer. Now I use it year-round and have my 3rd vest. We can get them free through the National MS Society and, I think MS Focus, but my memory is good tonight and am not sure about this one. You can check with them or if you get in touch with the national office, they may be able to tell you. You can get a new vest every 5 years from which ever organization you get it from. I used 2 of them and when I needed to replace a vest it hadn't been 5 years yet, so I contacted the other and was able to get a new set and 5 new gel packs to go with it. I like the Steele Best. They also offer cooling items for the neck, wrists, and under your hat or cap. Hope you find something helpful.

June 27, 2024
A MyMSTeam Member

Thanks I'll take a look!

June 22, 2024
MyMSTeam

Sure! Here is detailed information about cooling vests for people with multiple sclerosis (MS) based on the provided context:

### Benefits of Cooling Vests for MS
- Symptom Management: Cooling vests help manage heat sensitivity, which can temporarily worsen MS symptoms such as fatigue and vision changes (Uhthoff’s Show Full Answer

Sure! Here is detailed information about cooling vests for people with multiple sclerosis (MS) based on the provided context:

### Benefits of Cooling Vests for MS
- Symptom Management: Cooling vests help manage heat sensitivity, which can temporarily worsen MS symptoms such as fatigue and vision changes (Uhthoff’s phenomenon).
- Increased Stamina: They may increase stamina and help prevent fatigue during daily activities and exercise.
- Comfort: They provide comfort during hot days and physical activities.

### Types of Cooling Vests
1. Active Cooling Vests:
- Mechanism: Use electrical or battery power to deliver continuous cooling.
- Benefits: Strong, continuous cooling power; can decrease core body temperature.
- Cost: More expensive, starting around $150 and can exceed $2,000.

2. Passive Cooling Vests:
- Mechanism: Use gel packs that provide short-term cooling (30 minutes to four hours).
- Benefits: Portable, lightweight, and do not rely on an external power source.
- Cost: Less expensive, starting around $30.

### User Preferences and Experiences
- Phase Change Cooling Vests: Preferred for their versatility and ability to be charged in various ways (fridge, freezer, ice water, air-conditioned environment).
- Ice Vests: Generally avoided due to the risk of numbness and frostbite.
- Fit and Comfort: Essential to find a vest that fits snugly to maximize cooling effects. Velcro closures are common to keep the vest close to the body.
- Style and Practicality: Important to choose a style that you feel comfortable and confident in.

### Practical Tips
- Evaluate Needs: Consider personal needs and preferences before investing in a cooling vest.
- Community Insights: MyMSTeam members share their experiences and recommendations, such as the Polar Vest and gel-lined neckties.

### Cost Assistance
- MSAA’s Cooling Distribution Program: Offers cooling vests and garments free of charge based on need and income. More information can be found on the MSAA’s cooling program page.

### Everyday Use
- Physical Activity: Helpful during activities like BBQs, parades, and playing with pets.
- Combination Use: Some users wear multiple cooling garments (vests, shirts, pants, beanies) for enhanced cooling.

### User Testimonials
- Positive Feedback: Many users report significant benefits and increased activity levels.
- Negative Feedback: Some users find certain vests bulky or ineffective due to quick melting of ice packs.

For more detailed experiences and recommendations, you can visit the MyMSTeam community page.

June 22, 2024
A MyMSTeam Member

Thanks very much

June 28, 2024
A MyMSTeam Member

Yeah, 75 starts to create issues but 80 on up is a no go. I have a cooling pack for around my neck but definitely seeing time to do more.

June 22, 2024

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Austin, Texas, TX