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I have been having issues of pain with my eyes for a long time now. Explaining of first a deep painful scooping feeling and now it's a pretty consistent pulling like an elastic. Both my GP and neurologist sympathize? But say it's not an MS Symptom. I am waiting to get into the eye specialist.
I know we should never Dr Google but it sounds like a possibility and wondering if others have been diagnosed with both?

June 30, 2024
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A MyMSTeam Member

Thanks so much for your answer. I'm seeing my GP this week to ask for the eye referral. I was also contemplating asking for the blood test too.
I guess I needed to hear I'm not crazy thinking there might be something else going on...rare but maybe? MS can be so mind confusing.

July 1, 2024
A MyMSTeam Member

Some doctors I visited believe my lesions are more typical of NMO however my eyes haven't been affected. All I learnt is that NMO was considered MS until not long ago, today they know it is two different "cousin" diseases. Some meds are the same like rituximab, but some won't work for NMO. I ran a test for antiaquaporina antibody. Come out negative. Also went through some eye check OCT and MRI.
I also looked if one can have both. It seems it is ultra ultra rare. Try having some exams specific for NMO like this antibody I mentioned and your specialist. All the best.

July 1, 2024
MyMSTeam

According to the provided context, neuromyelitis optica (NMO) and multiple sclerosis (MS) are distinct autoimmune disorders that can sometimes be misdiagnosed as one another due to their similar symptoms. There is no specific mention in the context of individuals being diagnosed with both NMO and MS simultaneously. However Show Full Answer

According to the provided context, neuromyelitis optica (NMO) and multiple sclerosis (MS) are distinct autoimmune disorders that can sometimes be misdiagnosed as one another due to their similar symptoms. There is no specific mention in the context of individuals being diagnosed with both NMO and MS simultaneously. However, it is noted that people with one condition are sometimes initially misdiagnosed as having the other. For example, a MyMSTeam member shared that after 22 years of being told they had MS, they were later diagnosed with NMO.

June 30, 2024

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