My cognitive issues started to become apparent when I stopped the DMT as the Dr's thought that I shouldn't be on it any longer due to being JCV positive on Tysabri. As I had no relapses at the time or whilst on it they said my MS was not active. I have since then been fighting them as my pain and cognitive functions have become so bad and my disability score on bad days are 6.5 due to pain and fatigue
So frustrating to be heard, when Dr's say they know best, for years I have been told my cognitive disfunction are not in line with someone who has RRMS but have they done anything? Apparently the drs think there is not enough leisons in my brain for their to be more on the spine 🤔 and now they say I likely have SPMS. I say thanks for checking me out earlier and listening when I said it wasn't right and my pain was excruciating. I hate drs who think they can play God. Thank God for 2nd opinions and drs who do listen even though it is 10 years to late.

Darn, a common issue it seems . I struggle with a lot of these issues. Personally I find doing word/math puzzles help somewhat, exercise the brain as much as you can , . Good on you for writing down what you can. Exercise the brain, a case of use it or lose it.

I had a rare, severe spinal cord injury caused by MS because I didn't know I had Ms therefore wasn't treating it.
The spinal cord/brain stem injury causes me constant, excruciating pain and altered sensation from the top of my head to the bottoms of my feet. The brain stem injury also affected my vision but not as much as gabapentin or pregabalin has.

I believe my cognitive issues are due daily medication I take and not necessarily because of any lesions in my brain. I cannot remember clearly or accurately - or sometimes not at all- something that was said to me or something that I read an hour ago, yesterday, 2 days ago, last week; but I can still recall stuff clearly and accurately that I saw, that I learned, that I was told years before I was diagnosed.

when I read your message I can relate completely. Lets be friends.

To answer AnnShophie hi, my name is Ida your MS sounds similar to mine the only reason is I also was did at 48 now 58 I also found out that I have had MS since the age of 24 due to an optic neuritis on my right eye but never referred to a neurologist, so long story short as of 48 the one thing that I had been experiencing was a bad/annoying pain in my right leg my PM DR. Referred me to a pain management they prescribed gabapentine and had a bad reaction such as a stroke so ER did CT scan found there was more to it so MRI was done and that explained and confirmed my MS then referred to a Neuro surgeon and he discovered 2 cysts on my lower back, scheduled surgery to remove cysts and pain free since, I considered that as a 2nd opinion of MS. I did start medication for MS corazones 3×times a week so far so good I do have balance issues and cognitive. Oh and the heat bothers me tremendously especially the sun and I live in S.A. TX but I do wear dark sunglasses an always put a cap on if I will be outdoors for a while.