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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Kitchener, ON

15 years on Tysabri, recently became JCV +( with very high levels)My Neuro is concerned about PML. I’ve been for lots of bloodwork and a Lumbar puncture. Still waiting on results but I’m kinda freaking out!!! I’m on zero ms treatment as I’ve been pulled off Tysabri and I’m scared of rebound relapses as I wait to start Kesimpta.

November 9, 2024
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A MyMSTeam Member

I think if they've had pml they wouldn't be on here because pml usually leads to death or severe disability

November 12, 2024
A MyMSTeam Member

AnnSofieWilliams May I ask why you are no longer on Tysabri?

November 10, 2024
A MyMSTeam Member

Try not to freak out too much about it. Anyone can get PML even if they are JCV negative.

November 9, 2024
A MyMSTeam Member

I’m on Tysabri. I recently became JCV high. I’m continuing Tysabri but changing from every 4 weeks to every 6 weeks.

November 9, 2024
A MyMSTeam Member

@A MyMSTeam Member That reads like a get out of jail card for your neuro, just blame the degenerative part.

November 16, 2024 (edited)

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