As a MSW, I am happy to advocate for anyone. Advocating is not a skill that is natural for many people and fortunately it is a skill I have and obviously practiced in a Police Department as a Victim Advocate and also for domestic violence and homeless shelters and private clients.
Read all laws in full. You may be surprised to learn how much physical therapy you are actually allowed although you may me told there are no more sessions.
And reach out to an organization or someone you feel comfortable with.
I read a post that someone was frustrated with how often her neurologist wanted to see her. AI responded to see a specialist in MS. I totally agree with this.
However, if assertiveness is not a skill you are comfortable with, I highly suggest bringing someone you trust and has the skill to your appointments.
I have done this for people over the phone during appointments.
If your doctor doesn't sit and listen to my your concerns and ask you enough questions, and pushes you out within five or ten minutes, change your Neurologist and do keep in mind a Team of doctors that practice different specialties working together for patients with MS is something you can find but may be a little distance away but worth everything.
Simirar to Chis but only three lesions detected at first and by time and space. Was diagnosed by MRI 30 years ago. No spinal tap. just history and lesions. Sadly, they weren't wrong, even though I had convinced myself a few times they were. Guess positive thinking doesn't always work but will not change. My story on being diagnosed is still on YouTube in "we Keep Moving"
I had walking issues and spasticity measured with a tuning fork then mri you have to meet two of three. A lumbar puncture is the third. 🤗 reported only works don’t have to have the visible.
I was diagnosed by MRI and a lumbar/spinal tap.
It took three. Very traumatic days in a Psych Ward before I realized no one could understand a word I was saying.
I don't believe in litigation. However, for a nurse in an ER to determine I needed to be in a Psych Ward without having me by a neurologist and having only a Psych nurse see me in the ER and put me in a Psych Ward because my speech was impossible to understand and I drove to the ER seeking help is unforgivable and how I did learn that the problem was Neurological and MS not anything psychiatric.
I am finally getting over the trauma when holidays approach.
That was 2015.
I have never returned to that ER and moved so I might be willing to go to an ER.
The worse part was how confused I felt and literally wondered if what I thought was real was a dream.
Fortunately, after three days of absolute confusion, I started to write down what I thought was true, which it was, and was able to write letters to the psychiatrists who probably thought, "Fu.k" we are screwed.
However I truly don't believe in litigation since it keeps you in a negative energy.
Or they would have absolutely been screwed for obvious malpractice in the ER and the time it took for me to calm down and begin writing.
My husband was not allowed to visit me those first three days in HELL.