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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 17, 2025
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A MyMSTeam Member

Yes I have, I take Ajovy injections once a month for the headaches/migraines

March 18, 2025
MyMSTeam

Yes, headaches are quite common among people with MS, with studies showing that over half of people with MS experience headaches. These can include sharp, stabbing sensations that may occur in the temporal region (side of the head).

The most common types of MS-related headaches are migraines and tension-type headaches Show Full Answer

Yes, headaches are quite common among people with MS, with studies showing that over half of people with MS experience headaches. These can include sharp, stabbing sensations that may occur in the temporal region (side of the head).

The most common types of MS-related headaches are migraines and tension-type headaches. Migraines typically cause intense throbbing pain, often on one side of the head, while tension headaches feel more like a tight band around the head. Many MyMSTeam members report experiencing severe headaches that can be quite disruptive to daily life. While some headaches may be brief and sharp like you're describing, others can last longer. If you're experiencing new or changing headache patterns, it's important to discuss these symptoms with your healthcare provider to ensure proper management and treatment.

March 17, 2025
A MyMSTeam Member

yes i occasionally get them take sumatripam does help

March 21, 2025
A MyMSTeam Member

Thanks Darlene, I spoke to my ms nurse when I was getting my infusion. He said that it could be MS just sparking into the trigeminal nerve that runs down the side of the face.
He ruled out stroke. He told me go to the doctor If I get it again and they will rule out other things, order an mri etc and that it may not be ms. He said that it is probably migraineous.
A ice pick describes it exactly.

March 20, 2025 (edited)
A MyMSTeam Member

I have had them since I was in my early teens. I didn't think about them being connected to any kind of problem like MS, I guess because they came and left quickly. I didn't even tell anyone for years. they used to be mainly on the left side of my head over my ear but lately they have been moving around. I did check into it more after my sister, who had venires and my daughter with Lyme disease told me they had them too. They are surprisingly called ice pick headaches most of the time only lasting for a short time but they can last longer. Mine have just recently started lasting longer but I guess they are caused from nerve damage.

March 20, 2025

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