Well the very best way I know. To describe Ms is I have a faulty wiring system some messages make it to the top and others don't

I think this is the more emotional side of MS. Needing and wanting to be understood. I have a tendency to present myself better than I am and this can be confusing to others. My advice would be to know who you are safe to be vulnerable with and then you can go deeper into your own personal experience. Otherwise, its generally most important to communicate the unpredictability of MS. One day someone sees you looking and feeling ok and assumes you are in general. This is the hardest to grasp for people. I had a friend see me on a bad day and she said later, “I’m glad you’re feeling better. I was really worried about you.” Meanwhile, I’ve had MS for seven years and she is a close friend. I have had as many bad days as good days. With the people closest to you, it’s important that the bad days are known as well as the good days. Unless it’s someone who lives with you or someone else who has MS, it’s very difficult to explain everything you go through. I advise to explain your personal and immediate needs and unpredictability. Some will rise in their care and understanding more than others and that acceptance has been a process for me but also helpful in knowing who to be vulnerable with. You are not alone, most importantly.

Over the years I have been challenged using my handicap placard, with one man mocking me saying oh yeah you look really disabled. I retorted with what does disabled look like to you? Because frankly, sir, you seem to be disabled in being sensitive and kind and being judgemental where you have no right. I don't have to explain myself. Shame on you for being so ignorant.
With family it's more difficult and some people are less patient than others.
And too demanding when you're not able to do things. That is extremely frustrating, but they can go look up the symptoms of multiple sclerosis. It's.
Not your responsibility to explain it to them even though you feel like it is. I have sometimes saidad.I look good on the outside.But you have no idea what's going on inside my body.
And you don't want to be me.

Sometimes misery loves company. I am comforted by all of these comments. I am just coming out of a small relapse but I still feel so, so tired. I pick away at something and then have to rest, repeat ad nauseum. Last week I couldn't even pick at my nose let alone something meaningful. However, I stood my ground (or lay on it, more like) and refused to do the things normally expected of me. People don't really get it. It's all stuff we have to keep on wading through

They don't understand they think I'm making things up