Answer Summary
Many community members shared frustration over the sky-high costs of MS medications, with prices for drugs like Ocrevus, Aubagio, and Kesimpta... Read more
@A MyMSTeam Member, the drugs work but are not a cure. In the 1970, you got MS, you were dismissed and sent home expecting to be disabled in 10 years or less. The drugs slow down the severity and delay disability. I had 30 years after my diagnosis before going SPMS and losing my career. Had a wonderulf life after diagnosis, got three undergrad degrees, my PhD, got married, had a successful career, raised two kids and travelled the w.orld. Might have not been possible, or even had a decent QoL without current therapies. They are expensive and not everyone responds well to them, but they are all we have or we could go back to the 70's. I' thankful I had 30+ years before disability slowed me down.
Thank you and I did finally get medicine for my skin and pain management ✨️ 🙌
I'm hopeful that it works
It takes a while but at least I received it as I had to jump through some hoops
I am using Kesimpta through the Novartis Patient Assistance program. I need to reapply every November and keep the date on my calendar. This is an easy program to follow. I got a lot of assistance from them.
It is a joke with their high costs and premiums for health care and meds here in the US. They have us over a barrel!
They do help you but once they cut you off they don't care