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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 29, 2025
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A MyMSTeam Member

Yes trail for MS...I have be on the octopus clinical study the last year.. hopefully to slow progress of PPMS

October 30, 2025
A MyMSTeam Member

Trials of what? A research study?

October 30, 2025
A MyMSTeam Member

I’m new to this as well. I was diagnosed with PPMS in Feb of this year. So far imI feel like I’m walking blindly.

October 29, 2025
MyMSTeam

Welcome! It's great that you're connecting with others who understand life with PPMS.

Are people with PPMS participating in MS trials?

Yes, many people with PPMS are interested in clinical trials. A MyMSTeam member shared that they trust their neurologist's opinions and would consult with them before making any decision Show Full Answer

Welcome! It's great that you're connecting with others who understand life with PPMS.

Are people with PPMS participating in MS trials?

Yes, many people with PPMS are interested in clinical trials. A MyMSTeam member shared that they trust their neurologist's opinions and would consult with them before making any decision to join a trial.

Clinical trials are important for PPMS research since treatment options are more limited compared to other MS types. Currently, ocrelizumab (Ocrevus) is the main FDA-approved medication that has shown effectiveness in slowing PPMS progression.

What to consider about trials:

- Discuss any trial opportunity with your neurologist first
- Trials help advance understanding and treatment of PPMS
- Your doctor can help determine if a specific trial is right for your situation

Since PPMS is rarer than other MS types and can be challenging to treat, participating in research can be meaningful both for your own care and for advancing knowledge about this condition.

Have you had a chance to talk with your neurologist about whether clinical trials might be an option for you?

October 29, 2025

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Providence, RI