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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Whose using Tysabri

A MyMSTeam Member asked a question 💭
Allenhurst, GA
February 4
 · 
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Answer Summary

Members discussed their personal experiences with Tysabri and other MS medications, with many sharing how long they were on Tysabri and why... Read more

Members discussed their personal experiences with Tysabri and other MS medications, with many sharing how long they were on Tysabri and why they eventually had to stop, often due to rising JC virus (tiger) levels or disease progression. Several members shared their journeys through other treatments like Tecfidera, Rebif, and Ocrevus, noting mixed results including stomach issues and flu-like side effects, with one member finding great relief on Ocrevus. A recurring theme was the emotional weight of living with MS long-term, the limits it places on daily life, and the community offering encouragement and practical tips like free audiobooks through Libby.

A MyMSTeam Member

@A MyMSTeam Member agreed, I was on Comadine blood thinner for a year when I had a DVT in my left thigh. It's no wonder there are so many side effects.

4 days ago
A MyMSTeam Member

I was on Thai sabry for over 15 years once my tiger levels got up high then they had to take me off of it because it only works for certain types of ms

February 7
A MyMSTeam Member

@A MyMSTeam Member Thanks for answering my question. I am glad that you found something that works for you.

February 5
A MyMSTeam Member

@A MyMSTeam Member is Tecfidera a pill? How did you do on that?

February 5
A MyMSTeam Member

I was on Thai sabry for about 20 years after a while your Ms advances in tysabri does not work anymore especially when you get to ppms there is no FDA approved drug for it yet I haven't gone into a clinical study to see if that works unfortunately Thai sabry releases the brain disease and releases your tigers levels I hate hearing all the commercials with Christina Applegate and the girl from The sopranos saying how they want to live life their way but that's not true you live your life the way Ms allows you to live your life they don't talk about the type of Ms that they have the medicine that they advocate for only works for certain people with MS and not everybody but you certainly only live your life the way Ms allows you to live your life

February 5

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