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A MyMSTeam Member asked a question 💭
Ipswich, UK

First, my personal MS PRAYER

My Steps are unsteady, and my progess is slow,
My journey a struggle, wherever I go.

I often will stumble, and sometimes may fall.

If you feel you must help, then please answer my call.

If I stumble you may catch me
If I fall, help me up.

But please, DON'T EVER STOP ME TRYING

-------------------------------------------

Second, the 'permission' given to me by my consultant after diagnosis:

"It depends how much you want to"?

March 26 (edited)
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Answer Summary

Members shared deeply personal answers to what keeps them going while living with MS, with faith in God, family, and grandchildren rising as... Read more

Members shared deeply personal answers to what keeps them going while living with MS, with faith in God, family, and grandchildren rising as the most common sources of strength. Several members described finding unexpected joy in physical activities like swimming and Jiu Jitsu, noting those moments felt like a brief escape from the disease. A recurring theme was the power of community, with many expressing that simply knowing others understand their daily struggles makes the hardest days feel less lonely.

A MyMSTeam Member

This is a great question. I hold onto my Lord and Savior Jesus Christ. He's been my rock that has carried me through each trial and each flare. The second is my wife and family. They have been very supportive. I couldn't and wouldn't have made it were it not for them being there holding my hand, laughing with me, encouraging me, and helping me through each step of the way. The third support that I have to hold onto is my congregation. As a pastor I was concerned how the congregation would react with a pastor who had MS. They have accepted that there are days where I just can't. Then they have loved me through my down days, and lifted me up through the rough times. I couldn't ask for anything better than those three areas of support in my life. Without each one, I know that I would have given up a long time ago.

April 2
A MyMSTeam Member

@A MyMSTeam Member, I LOVE your prayer! My purpose and progress is similiar. I find comfort in my Faith, Family, close Friendships, Daily Habits and Music!

March 26
A MyMSTeam Member

yes, TBoren, it can be extremely difficult to stay positive but there is so much inspiration and motivation out there. Use a few or more and keep on going.

March 31
A MyMSTeam Member

My faith in God and the strength and love of my girls who hold me up and make sure I’m doing well and even when I’m not.

March 26
A MyMSTeam Member

Well said, well versed!
I draw inspiration from my Fellow MyMSTeam Warriors, most notably Sir @A MyMSTeam Member among many others. We all have our individual battles, the way we each have found solutions to overcome our own unique MS is inspiring to me!
I am sure everyone is sick of me preaching about swimming and how while I walk so poorly but can swim as well as I could pre dx (although slower), I figure if just a few others can discover the same thing I have, than maybe I have helped a little bit.

March 26

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A MyMSTeam Member asked a question 💭
Los Angeles, CA