Thank you all for your experiences.
May 8
I have had several relapses over my @28+ years since my first onset of symptoms. My first being the numbness/tingly sensations in my fingers toes arms and legs, another flare was double vision and a third flare was just complete loss of mobility on one side of my body. But I also have the ‘everyday’ general fatigue, bladder urgency.
Happy, Happy, right!!
May 8 (edited)
I have had MS for 23 years...I believe I only used steroids once, early on. I don't take anything for MS. I am on Gabapentin for restless leg syndrome. They had me build up to 900mg but I backed down to 600mg.
May 8
A relapse to me looks like almost nothing in particular. I never noticed more numbness or tingling or weakness than usual, yet my MRI showed 2 new large lesions in my frontal lobe. So I think I'll switch from ocrevus to kesimpta to see if it works better for me.
May 8 (edited)
It's great that you're still mobile and active! Deciding whether to start Kesimpta (ofatumumab) is a big decision, and it's worth having a thorough conversation with your neurologist about your current disease activity, MRI results, and overall health goals before deciding.
One important thing to keep in mind is that MS Show Full Answer
It's great that you're still mobile and active! Deciding whether to start Kesimpta (ofatumumab) is a big decision, and it's worth having a thorough conversation with your neurologist about your current disease activity, MRI results, and overall health goals before deciding.
One important thing to keep in mind is that MS can progress silently — even without noticeable symptoms or flares. That's why many neurologists recommend disease-modifying therapies (DMTs) like Kesimpta even when someone feels well. As for what a relapse can look like, symptoms vary widely from person to person. Here are some common signs:
- Numbness or tingling in limbs
- Weakness in the legs
- Vision problems
- Dizziness or vertigo
- Difficulty walking or maintaining balance
- Bladder problems
- Disabling pain or fatigue
Some relapses are mild — just a small patch of numbness that resolves on its own. Others can be more severe and debilitating. A MyMSTeam member shared: *"I started getting vertigo. It kept getting worse. Then I probably got sicker than I ever have. Finally, I got too weak to walk."*
Another MyMSTeam member wrote: *"Paralysis, spasticity, legs just plum don't work."*
Relapses can sometimes come on gradually or suddenly, which is why staying in close contact with your neurologist matters — especially if you're managing things naturally right now.
May 5
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