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IgG levels low time for MORE infusions

A MyMSTeam Member asked a question 💭
Suffolk, VA

I’m due for another infusion for my low IgG levels, and for some reason hearing “5 infusions” out loud completely stopped me in my tracks. I can’t even fully explain why it hit me this hard this time, but it did. Maybe because after years of appointments, medications, needles, tests, infusions, and trying to convince myself I’m “handling it,” the reality of it all suddenly felt impossible to ignore.

I think there’s a strange kind of grief that comes with realizing your body has quietly become… read more

May 20
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MyMSTeam

Coping with MS fatigue and emotional burnout is genuinely hard, and it's something so many people with MS navigate every day. The good news is there are real, practical strategies that can help.

Here are some approaches that many people find useful:

- Keep a fatigue journal — tracking sleep, daily activities, and energy Show Full Answer

Coping with MS fatigue and emotional burnout is genuinely hard, and it's something so many people with MS navigate every day. The good news is there are real, practical strategies that can help.

Here are some approaches that many people find useful:

- Keep a fatigue journal — tracking sleep, daily activities, and energy levels over a couple of weeks can help identify patterns and triggers
- Schedule wisely — plan demanding tasks during your highest-energy times of day
- Break tasks into smaller steps — don't try to tackle everything at once
- Stay cool — heat and humidity can worsen fatigue, so cooling vests, fans, or air conditioning can make a real difference
- Talk to your doctor about medications — there are medications that can help manage MS fatigue specifically
- Consider supplements — some people find these helpful, but always check with your doctor first to avoid interactions with existing medications
- Work with an occupational therapist — they can teach energy-saving techniques tailored to your daily life On the emotional side, burnout is just as real as the physical fatigue. MS-related brain changes and lesions can directly contribute to mood shifts, so it's not "just stress."

A few things that can help emotionally:

- Let go of guilt — fatigue is caused by the disease itself, not by anything you've done wrong
- Talk to a mental health professional — a therapist familiar with neurological conditions can be especially helpful
- Communicate with loved ones — helping people around you understand what MS fatigue actually feels like can reduce isolation
- Discuss emotional symptoms with your neurologist — depression and fatigue are closely linked in MS and both can be addressed together

As one MyMSTeam member shared, keeping positive isn't always easy, but finding small ways to manage both the physical and emotional load can make a meaningful difference. You're not alone in this. 💙

May 20
A MyMSTeam Member

I attend www;recoveryinternational.org groups online-- mental health

May 21
A MyMSTeam Member

I feel the same hun. Like what else or how can I do anything else. Being g patient and fighting gets old.

May 21
A MyMSTeam Member

Oh yeah, I go from "zippa de do da" one minute to "oh, mama, could this really be the end . . .," the next. Consider doing puzzles, watching educational game shows, playing mahjong, taking Neurvive, Prevagen or other brain focus improvement supplement, magnesium glycinate and if you can afford it, magnesium threonate (most expensive magnesium). If your body can tolerate these, try lion's mane mushroom, cordyceps mushrooms or a mix of 3-5 mushroom blend including those two and reishi.

May 21 (edited)
A MyMSTeam Member

It’s the WORSTTT 😭 One minute you’re out here living life, vibing, minding your business because everything feels fine… then BOOM 💀 reality comes crashing through the wall like “hey bestieeee 👋 don’t forget you have MS and need more infusions LOL.” Like thanks body, very cool of you 😂

But honestly, whenever I start spiraling or questioning everything, I come on here and post and hearing from people who actually get it helps more than I can explain. It kinda pulls me outta the mental swamp for a bit 🫶 and I’ll take that any day. Y’all really have been the sweetest, most supportive community and I appreciate it more than you know ❤️

May 21

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