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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
North Canton, OH
May 29
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A MyMSTeam Member

You will most likely receive steroids. Some dexamethasone. You will also most likely receive some benadryl or antihistamine. Some ibuprofen. It's easy. Eat some snacks. Watch some YouTube. Listen to some music. After 1 or 2, it becomes routine.

May 31
A MyMSTeam Member

I read what everyone else wrote. You will get meds before your infusion like aspirin, Benadryl and steroids in some form. I've had more than a few infusions, know the initial stick doesn't hurt but still can't watch as the intravenous port is placed in. That's the worst part for me. I advise bring something to occupy your mind like others have added but what I didn't read was what always happens to me. Your infusion places liquid medication in your body and it always makes me pee. The staff where you're being infused will need to help you to the bathroom but the infusion continues. It's no big deal. Like has been commented, you're under almost constant obersvation so have fun!

June 1
A MyMSTeam Member

It's a non event , boring 6 hours or so. As Liz wrote, Take a laptop or similar to help pass the time (I watch movies for hours). Snacks and fluids as hospital food tends to suck. You will be fine,just take wht ever you need to absorb the time , and breath mints as the prednisone they often start the infusion with can leave a metallic-ish taste in the mouth . look forward to hours of enforced idleness .

May 31
A MyMSTeam Member

Anything new especially a new medicine being added to your body is scary but I can say with infusions it’s been good for me. More than likely you’ll get some premeds up front. For the first few treatments you’ll be under constant observation. Take a phone charger, tablet/ipad, books, snacks, drinks, and a small throw blanket. Wear comfortable clothes. I use the time to catch up on sleep and shows that I miss. At my treatment center I’m allowed a support person with me. Sometimes my hubby comes with me and we just hang out and watch shows together. From one MS Fighter to another, Good luck and I’m wishing you the best with your health!

May 31
A MyMSTeam Member

I was also scared my first time. I think it's the unknown that does that to us. I had the most amazing infusion nurse that walked me through it every step of the way. now they are no big deal. ❤️

May 31

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A MyMSTeam Member asked a question 💭
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