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A MyMSTeam Member asked a question 💭
Grand Rapids, MI

I have RRMS I have more bad days then good. I was wondering anyone could give me advice on what has helped them. I have lost 3 jobs this year alone because I can’t function the way my job needs me too. Please help

May 30
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A MyMSTeam Member

I had to quit working due to my ms. I got 5 years after my dx. I was a workaholic. In 5 years I pushed my self so hard to be where I wanted to be. I made it. 4 mos later the stress put me in a wheelchair for three months. I had to quit working because the stress of my job kept giving me flareups. What’s the hardest thing I had to do that was in 2016 and I still miss it and I have no friends because they’re all working. But you have to listen to your body. I walk 3 1/2 miles a day now I was 165 pounds I’m 125 so you get to the places you want to be you will but your body has to come first. Good luck.❤️
I had to have plasmaphesis to get out of that wheelchair. And the number one thing I learned for steroids watermelon for the swelling.Lol

June 2
MyMSTeam

Losing three jobs in one year while managing RRMS is genuinely exhausting and heartbreaking — and you are absolutely not alone in this struggle. Many people with MS face similar challenges, and there are real strategies that can help.

First, know your workplace rights. In the U.S., the Americans with Disabilities Act (ADA) Show Full Answer

Losing three jobs in one year while managing RRMS is genuinely exhausting and heartbreaking — and you are absolutely not alone in this struggle. Many people with MS face similar challenges, and there are real strategies that can help.

First, know your workplace rights. In the U.S., the Americans with Disabilities Act (ADA) requires employers to provide reasonable accommodations. This could mean:

- Flexible work hours
- Remote or hybrid work options
- More frequent breaks
- Modified duties to reduce physical strain

Physically demanding jobs are harder to accommodate, so if possible, roles that are more desk or communication-based may be more sustainable long-term. Managing flare-ups themselves is also key to staying employed. Some things that have helped others include:

- Sticking closely to your prescribed MS treatment plan
- Avoiding known triggers like heat, stress, and exhaustion
- Eating a balanced diet and getting regular, appropriate exercise
- Keeping a symptom log to share with your neurologist — especially if flares are increasing, as your current treatment may need adjusting
- Working with a vocational rehabilitation specialist who can help you conserve energy and adapt to your job demands Stress is a known trigger for MS relapses, so managing workplace stress matters too. One MyMSTeam member shared that a high-stress job with long commutes made their symptoms significantly worse, ultimately leading them to leave work entirely.

If staying employed becomes too difficult, it's worth talking to your healthcare team about documenting your condition thoroughly in case you ever need to apply for disability benefits like SSDI. Keeping organized medical records from the start makes that process much smoother.

Most importantly — talk to your neurologist. They can help you find the right balance between managing your health and staying in the workforce. 💙

May 30

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