Thank you very much for advice!
June 28
There actually is something β and that's genuinely good news! While treatment options for progressive MS are more limited than for relapsing forms, they do exist and the field is moving forward quickly.
Ocrevus (ocrelizumab) is currently the only FDA-approved disease-modifying therapy (DMT) specifically for primary Show Full Answer
There actually is something β and that's genuinely good news! While treatment options for progressive MS are more limited than for relapsing forms, they do exist and the field is moving forward quickly.
Ocrevus (ocrelizumab) is currently the only FDA-approved disease-modifying therapy (DMT) specifically for primary progressive MS. It works by reducing certain immune cells (B cells) and has shown real results in slowing disability progression. Beyond that, symptoms can be managed with a range of treatments, including:
- Muscle relaxants for spasticity and stiffness
- Physical, occupational, or speech therapy depending on your symptoms
- Corticosteroids to help manage flares
- Antidepressants for mood, fatigue, or nerve pain
- Dalfampridine (Ampyra) to help with walking difficulties Lifestyle adjustments can also make a meaningful difference. A MyMSTeam member shared that she tries to "hit MS from as many sides as possible" β combining medication with dietary changes, regular exercise, stress reduction, and rest.
Researchers are also actively exploring new treatments like stem cell therapy and EBV-specific T-cell therapy, so there's real reason for hope on the horizon. The most important next step is having an open conversation with your neurologist about which treatment plan fits your specific situation and goals. You're definitely not without options. π
June 28