Used to be. Too many infusions for me. Every 4 weeks at first. Then every 6 is still too many. I'm on Ocrevus now. Every 6 months so we can pretend to forget about this horse shit.
July 9
Yes, many people with MS are on Tysabri (natalizumab)! It's one of the more commonly used infused disease-modifying therapies (DMTs) for relapsing forms of MS. It's given as an IV infusion once every four weeks at an infusion center.
Many MyMSTeam members have shared their experiences with Tysabri. One MyMSTeam member Show Full Answer
Yes, many people with MS are on Tysabri (natalizumab)! It's one of the more commonly used infused disease-modifying therapies (DMTs) for relapsing forms of MS. It's given as an IV infusion once every four weeks at an infusion center.
Many MyMSTeam members have shared their experiences with Tysabri. One MyMSTeam member noted that in the last week before their next infusion, symptoms tend to feel a bit heavier — especially balance, fatigue, and speech. This is sometimes called the "crap gap," which refers to a wearing-off effect near the end of a dosing cycle. There are some important things to be aware of with Tysabri:
- JC Virus monitoring — Tysabri carries a risk of a serious brain infection called PML, which is linked to the JC virus. Your doctor will likely monitor your JC virus antibody levels every six months.
- Higher JC antibody levels increase the risk of PML, so your neurologist may discuss switching treatments if levels rise.
- Extended interval dosing may reduce PML risk for some people — worth discussing with your neurologist.
One MyMSTeam member shared that Tysabri was the only medication that had worked for them, which shows how effective it can be for some people. As always, it's best to talk with your neurologist about whether Tysabri is the right fit for you.
July 8
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