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A MyMSTeam Member asked a question πŸ’­
Tinley Park, IL

I was thinking about the Baclofen pump. Not sure I want to do this and have something in my back.

July 15
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Baclofen for MS Muscle Spasms: How It Works, Side Effects, and More Read Article...
A MyMSTeam Member

Type in baclofen pump in the upper right circle of the screen and there are many comments from people who have used it

July 15
A MyMSTeam Member

Is there anyone out there who has the Baclofen pump and can share their thoughts?e

July 15
A MyMSTeam Member

I would like to have a conversation with someone who has the Baclofen pump

July 15
MyMSTeam

It's completely understandable to feel hesitant about having a device implanted β€” that's a big decision! Here's what's helpful to know about the baclofen pump for MS spasticity.

The pump is actually placed in the abdomen (belly area), not the back. A small tube runs from the pump to deliver baclofen directly into the fluid Show Full Answer

It's completely understandable to feel hesitant about having a device implanted β€” that's a big decision! Here's what's helpful to know about the baclofen pump for MS spasticity.

The pump is actually placed in the abdomen (belly area), not the back. A small tube runs from the pump to deliver baclofen directly into the fluid around your spinal cord. One of the biggest advantages is that the pump delivers baclofen at a much lower dose β€” about 100 times less than oral baclofen β€” because it bypasses the blood-brain barrier and goes straight to where it's needed. This can mean fewer side effects like drowsiness.

Some MyMSTeam members have shared really positive experiences:

- "I had a baclofen pump implanted, and now I can stand up straight, have no pain, and feel like a normal person again."
- "The pump was the best thing for me. I can't believe how much better I am!" Before committing to surgery, doctors typically offer a test dose first. This involves a simple spinal injection of liquid baclofen to see how your body responds β€” kind of like test-driving a car before buying it. That way, you can make a more informed decision.

As one MyMSTeam member shared, "I'm having a baclofen test to see if I'm a candidate for a baclofen pump because my spasticity is so bad."

It's worth noting there are some risks to consider:

- Infection at the implant site
- Pump malfunction
- Requires regular refills and follow-up care

Talking with your neurologist about whether you meet the criteria is a great first step!

July 15

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A MyMSTeam Member asked a question πŸ’­
Tinley Park, IL