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My neurologist just told me I’m going downhill, and that’s just the way it is…
Reality is one thing, but I find it hard to cope with the uncertainty of not knowing HOW bad it will be. How do you manage it? Would love to hear some ideas!
🙏🏻😁

July 17
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Answer Summary

Members rallied around the question of how to cope with uncertainty after receiving a discouraging prognosis, with many pushing back on the... Read more

Members rallied around the question of how to cope with uncertainty after receiving a discouraging prognosis, with many pushing back on the idea that a neurologist's prediction is final, sharing their own stories of outliving or defying what they were told. Several members suggested practical strategies like mindfulness, meditation, prayer, staying present, finding a more empathetic neurologist, and using AI tools alongside personal medical records to better understand their individual situation. A recurring theme was the power of self-advocacy, community support, and choosing to focus on living fully rather than fearing what may never come.

A MyMSTeam Member

Best of luck !! Keep us posted , and stay strong! @A MyMSTeam Member

July 18
A MyMSTeam Member

find a new neuro would be my advice🥰

July 17 (edited)
A MyMSTeam Member

When i got the MS DX., at the age of 24, My Neurologist told Me in Five Yr.s I would be in a Wheelchair and I am 64 Years old and still Walking!!!

July 17
A MyMSTeam Member

I am so sorry that neurologist told you that. I don’t like when doctors say things like that. I don’t think they should put that negativity into the mind of a patient . They cannot be 100 percent sure that you will not stabilize , our bodies are very unique and you never know what is going to happen. I do not go to counseling , but when I feel thoughts creeping in about the uncertainty of the future I like to practice mindfulness. Either meditation, prayer or keeping myself busy and in the “now” focusing too much on the unknown will only cause anxiety . I think take it one day at a time. Don’t worry until you have a reason to worry. ❤️

July 17
A MyMSTeam Member

You are amazing @A MyMSTeam Member! Keep on advocating and let us know how you get on. Take care 💜

July 18

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