MyMSTeam

What a journey you've been through — and thank you for sharing something so personal. It sounds incredibly tough, and you're definitely not alone in this experience.

Graves' disease after Lemtrada is a well-documented risk. In fact, autoimmune thyroid dysfunction — particularly Graves' disease — can develop in up to 40% of Show Full Answer

What a journey you've been through — and thank you for sharing something so personal. It sounds incredibly tough, and you're definitely not alone in this experience.

Graves' disease after Lemtrada is a well-documented risk. In fact, autoimmune thyroid dysfunction — particularly Graves' disease — can develop in up to 40% of people who take Lemtrada for MS. That's a significant number. The symptoms you described are very consistent with what others experience, including:

- Excessive sweating
- Anxiety
- Significant weight loss
- Irregular or fluctuating hormone levels

Many MyMSTeam members have shared similar frustrations. One member said: *"My thyroid hormone levels go crazy at times. One day they can be normal, the next not. I also can tell when they are off. My husband can too. I become very irritable — basically, just pure mean!"* The way Lemtrada affects the immune system is thought to trigger these thyroid changes, though it's not fully understood yet.

The good news is that thyroid conditions resulting from MS treatment can often be managed — as you're doing with Levothyroxine. It's always worth keeping your neurologist and endocrinologist closely in the loop, especially when regulating temperature and hormone levels remains a challenge. 💙

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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