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Experiencing longer time frame of most recent flare up/ relapses
Thanks for any info

September 4
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Answer Summary

Members explored the neurological and anatomical reasons behind MS flare-ups, with helpful explanations about how lesion location in the brain... Read more

Members explored the neurological and anatomical reasons behind MS flare-ups, with helpful explanations about how lesion location in the brain or spinal cord affects both the type and duration of symptoms. Several members shared that real flares involve new symptoms lasting more than a day, while pseudo-flares are returning symptoms that resolve sooner, and recovery can take anywhere from 3 to 6 months. A recurring theme was the emotional weight of managing MS alongside other serious health challenges, and the deep gratitude members felt for a community that listens without judgment.

A MyMSTeam Member

Hi WednesdayBanks
Thank you so much for understanding. It is extremely hard I find it terribly hard with the MS and Lymphoma to talk to anyone normal who only sees the outside not whats going on the inside. I absolutely hear what your saying. As I too have experienced the harshness of people whom do not understand these illnesses. You hang in there keep positive and enjoy your world.
Sending lots of positivity 😍🤩

Mar22

September 10
A MyMSTeam Member

same humid sucks feel gross

September 7
A MyMSTeam Member

I'm trying to, Mar22; the majority of my family is very limited in understanding about health care, they're not learning about MS along with me-they consider me a Miss-know-it-all when I don't know everything. Another thing is that it's a repetitive generational cycle that's exhausting, exapserating, etc.-most of my family think I'm weird and only come to me on an "as needed basis" or to try to bring me down to their level when it's ugly, spiteful, and definitely not needed in this world. I feel all alone in this battle but I'm glad I already have the victory-no pride or gloating at all b/c their trying to be arguments, disputes, etc. have no weight or legitimacy in them. About the health care iindustry here in N. California, please read my story-it's getting to be everywhere-some doctors are just being there for $ and perks/kickbacks/etc., some know some info but I don't think the continuous ed. courses are staying in their memory banks or it doesn't align w/their thinking, ideas, etc., others are stubborn and don't want to adapt. btw, don't be afraid to rant on here, it's perfectly fine and acceptable here.

September 7
A MyMSTeam Member

A precise question, I love it! Flares and pseudo-flares are unpredictable-they're almost always caused by a new lesion in either the spinal cord or brain. Flares and psuedo-flares from those around T-5through T-7 may experience more tingling, pain and/or inflammation, reduced or abnormal function in the arms and hands, digestive problems, other symptoms. The nerves in the lumbar section L1-L5 can experience reduced or abnormal urinary control, worsening back pain, sexual dysfunction and so much more. But the main thing to know is that flares and pseudo-flares last different periods of time and real flares are new symptoms that appear and last a day, pseudo-flares are usually previous symptoms that usually last 1-3 days, sometimes longer. Hope this helps.

September 4
A MyMSTeam Member

I think it depends on what part of the brain gets affected and how big it is . I think sometimes the outer ring of certain lesions stay inflamed longer than others and it makes the symptoms of the flare last longer. I was told it takes 3-6 months for recovery from a flare , but again I am sure everyone is different.

September 4

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