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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Stupid Things People Say To You (when They Hear You Have MS)...

Stupid Things People Say To You (when They Hear You Have MS)...

The one constant with MS is there is NO CONSTANT!!! While we have some symptoms in common, no two people experience MS the same way. To that end, it drives me batty when I meet people who know someone (a cousin, wife's sister, friend of a friend, man down the street) who was diagnosed X years ago and "is just fine." "Don't worry about it, she doesn't feel anything." Or "God only gives you what you can handle." or "If you pray more it will be better."

I hate when people assume that your case… read more

posted October 27, 2013 (edited)
Last of 841 replies sign up to view previous answers
A MyMSTeam Member

Understand. Have some of those days also. Dear friends, even my sister doesn’t understand
The loss of who you once were has slowly diminished as the years go by
This time last year didn’t use a… read more

posted November 24

What Are Your Top Tips For Managing MS In The Summer Heat?

What Are Your Top Tips For Managing MS In The Summer Heat?

posted June 29
Last of 609 replies sign up to view previous answers
A MyMSTeam Member

stay inside under the AC, go grocery shopping at night.

posted 4 days ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

posted April 27
Last of 609 replies sign up to view previous answers
A MyMSTeam Member

Thanks for the hugs @MyMSTeam users... and @Tazmann55 . Be Blessed 😇 Friends

posted November 16

How Do You Describe A Flare?

How Do You Describe A Flare?

posted June 12, 2017
Last of 495 replies sign up to view previous answers
A MyMSTeam Member

As an inconvenience that I have to adapt to

posted September 6, 2021

What’s The Biggest Life Hack That Has Helped You Manage Your Condition?

What’s The Biggest Life Hack That Has Helped You Manage Your Condition?

posted February 25
Last of 489 replies sign up to view previous answers
A MyMSTeam Member

Thanks for the hugs @MyMSTeam users... and @A MyMSTeam Member . Be Blessed 🙏🏾 Friends

posted September 20

What Advice Would You Give To Someone Recently Diagnosed With MS?

What Advice Would You Give To Someone Recently Diagnosed With MS?

posted September 28
Last of 453 replies sign up to view previous answers
A MyMSTeam Member

My friend gets horrible migraines she see’s a chiropractor and it has helped immensely. They may not have done a spinal tap because they can cause horrible horrible headaches, if they do end up doing… read more

just posted

How Were You Diagnosed? Was It A Lumbar Puncture, Was It An MRI?

How Were You Diagnosed? Was It A Lumbar Puncture, Was It An MRI?

posted March 28, 2013
Last of 453 replies sign up to view previous answers
A MyMSTeam Member

I was diagnosed on history of a child who was diagnosed three years before and an MRI with a lot of inactive lesions. That was it. On Copaxone for 12 years. When I was 70 I came off medications. Had… read more

posted January 5, 2021

How Do You Handle Family Or Friends With Good Intentions, But End Up Being Unreliable?

How Do You Handle Family Or Friends With Good Intentions, But End Up Being Unreliable?

posted January 5, 2018
Last of 422 replies sign up to view previous answers
A MyMSTeam Member

With a long-handle spoon. I always felt actions speak louder and their hollow words and MIA ways made it clear to me. I stop reaching out to them and they never bother to reach out to me. They did the… read more

posted December 11, 2021
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