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Multiple Sclerosis

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Stupid Things People Say To You (when They Hear You Have MS)...

Stupid Things People Say To You (when They Hear You Have MS)...

The one constant with MS is there is NO CONSTANT!!! While we have some symptoms in common, no two people experience MS the same way. To that end, it drives me batty when I meet people who know someone (a cousin, wife's sister, friend of a friend, man down the street) who was diagnosed X years ago and "is just fine." "Don't worry about it, she doesn't feel anything." Or "God only gives you what you can handle." or "If you pray more it will be better."

I hate when people assume that your case… read more

A MyMSTeam Member said:

spoon theory is my life

posted 3 months ago

What’s The Best Advice You’ve Received From Someone Else Living With MS?

What’s The Best Advice You’ve Received From Someone Else Living With MS?

A MyMSTeam Member said:

Yes I do have pain and I am what my doctor calls active secondary progressive. But I have to look forward and just remember that God's holding me up each and every day and will carry me when I'm no… read more

posted 5 months ago

How Were You Diagnosed? Was It A Lumbar Puncture, Was It An MRI?

How Were You Diagnosed? Was It A Lumbar Puncture, Was It An MRI?

A MyMSTeam Member said:

I was diagnosed on history of a child who was diagnosed three years before and an MRI with a lot of inactive lesions. That was it. On Copaxone for 12 years. When I was 70 I came off medications. Had… read more

posted about 1 year ago

How Do You Handle Family Or Friends With Good Intentions, But End Up Being Unreliable?

How Do You Handle Family Or Friends With Good Intentions, But End Up Being Unreliable?

A MyMSTeam Member said:

With a long-handle spoon. I always felt actions speak louder and their hollow words and MIA ways made it clear to me. I stop reaching out to them and they never bother to reach out to me. They did the… read more

posted about 1 month ago

How Do You Make New Year Resolutions That Actually Work?

How Do You Make New Year Resolutions That Actually Work?

A MyMSTeam Member said:

No, and I don't make a "to do list" but rather a "to done list" as that gives me that sense of accomplishment...Have a blessed day everyone!!!

posted 21 days ago

Is MS Genetic? Since My Mother, Aunt And Cousin Have It As Well. My Doc Says It Is Definitely Not Genetic. Is He Nuts Or Am I?

Is MS Genetic? Since My Mother, Aunt And Cousin Have It As Well. My Doc Says It Is Definitely Not Genetic. Is He Nuts Or Am I?

My Doc says it definitely NOT genetic. Is he nuts or am I?

A MyMSTeam Member said:

It is quite possible the family members that have MS have lived for a long period of time or was raised in an environment the fosters MS.

posted almost 2 years ago

I Need Help With My Fatigue. What Is There To Help

I Need Help With My Fatigue. What Is There To Help

I am feeling so weak by the afternoon. I feel like I need to lay down always. I'm trying to get enough sleep and walking 30 min a day. Its just seems to be getting worse.

A MyMSTeam Member said:

I take B-12 time released. I think Nature Mde is the brand

posted 7 months ago

Foot Drop

Foot Drop

I know I ask so many questions, sorry guys but i feel like you guys are the only people that can help. So another question, has anyone managed to treat foot drop? Or is there no treatment?

A MyMSTeam Member said:

I need to talk to my doctor about that. Only need it badly a month before more orcevus. Or if i have been on leg alot.

posted 7 months ago
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