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Multiple Sclerosis

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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Article On Stem Cells

Article On Stem Cells

How do I get info on these treatments here in the USA? And how do I begin the process? I have tried and failed numerous times to bring this up with a number of doctors, and have been shot down every time with comments ranging from “we don’t do that kind of thing here” to a full on outburst full of rather racist comments about “shit hole” countries and “snake oil salesmen” I am a Canadian person living in the USA (permanent resident) and I know for a fact that these treatments have been… read more

A MyMSTeam Member said:

Look I asked my neurologist about this (& even had a family member willing to pay for it!) He flat out told me he didn’t think it was a good… read more

posted 4 days ago

MS Hug

MS Hug

For the first time since my 2010 dx, I am suffering from this disabling pain. Zanaflex & Percocet provide no relief. Is there any med or treatment I can ask my neuro about? Any ‘home remedies’ that work? Will this new symptom ‘stick around’ or does it come & go? Thank you for any help you can provide.

A MyMSTeam Member said:

Honestly I suggest prayer and rest. The first time I had one I was in my teens and I was terrified! I had no idea I had ms and didn't get diagnosed till… read more

edited, originally posted 2 days ago

Tuck And Roll

Tuck And Roll

What does the term tuck and roll mean??

A MyMSTeam Member said:

ok I looked it up. I use search engine "duckduckgo" because they are not tracking.
I found a minimum of 4 definitions. 2 were how it applies to police… read more

posted 6 days ago

Hip Replacement And Chronic Kidney Failure.

Hip Replacement And Chronic Kidney Failure.

I had a hip replacement done two years ago. (3 times , it wouldn't stay put. Dr's was confused as to how that could happen. Took 6 months to start again to start walking. Have to use a walker now and planning to go back to physical therapy. Question - recently been diagnosed with chronic kidney failure. Going for tests again. Can anyone tell me about side effects, medications, another life altering symptom. I'm being informed about 'self-catherization." Is that… read more

Fatig

Fatig

My Dr. recently prescribed Amantadine, 100mg, to :help with my fatigue issues. I really can't feel much of a change; it's been a little over 3 weeks now. I was told to take the second of the two doses before 2pm, otherwise, so I was told, it could cause problems with sleep. That much is true: one time I took the second one about 2pm; sure enough, around 3am, I woke up, and couldn't get back to sleep! Does anyone have experience with this medicine, and did it help?

A MyMSTeam Member said:

@A MyMSTeam Member I've figured out a fatigue solution that works for me, yes....but lovely MS continues to expose me to new challenges on the regular!… read more

posted 1 day ago

Anyone Eles?

Anyone Eles?

MS fatigue 100% of the time, but I didnt no MS insomnia was a thing, soo tired and as soon as I get in bed wide awake, anyone else experiencing this or any ideas on how to help it??

A MyMSTeam Member said:

Yes All of the time!!! Like right now!!! You are not alone

posted 1 day ago

When Lifted With Hoyer Sling, Skin-response On Legs Is Making Patient Extremely Uncomfortable.

When Lifted With Hoyer Sling, Skin-response On Legs Is Making Patient Extremely Uncomfortable.

Patient spends all her time sitting and's lifted for toileting, bathing and dressing. It's during the lifting with Hoyer Sling which seems to induce negative response in patient's skin. Skin's in tact...no lesions, broken skin or scaring. Have tried lidocaine-based creams to de-sensitize nerve reaction with no benefit. Any suggestions?

A MyMSTeam Member said:

Maybe get different sling. Made of less irritating material. Pressure from sling is just part of the process. Last short time.

posted 8 days ago

Pain In Toes

Pain In Toes

My toes are numb and they hurt to move them. Is this MS related? I was diagnosed 30 years ago

A MyMSTeam Member said:

Yes

posted 1 day ago

Fasting Mimicking Diet By Dr. Longo

Fasting Mimicking Diet By Dr. Longo

I've been reading a lot on the Fasting Mimicking Diet (FMD) by Dr. Longo. I've had other medical professionals in the past discuss with me about cell regeneration, so when I started researching this everything clicked.

Has anyone had any experience with this?

https://www.foundmyfitness.com/episodes/fasting...

A MyMSTeam Member said:

I had this for Eons....I always ask.Questions from my .notepad and all That

posted 7 days ago

Anyone On Here Have MS And Bipolar Disorder1?

Anyone On Here Have MS And Bipolar Disorder1?

Just wondering how you deal with the depression problem seems to me i have more suicidal thoughts and hospitalizations when i notice im having a flare up. Lately i have been falling more and having more trouble with my concentration and all i want to do is sleep especially now that the pressure headaches have been happening more often. if you have both what is your medication mixture and how do you think it works for you?

A MyMSTeam Member said:

Frustration. I know, get a break and fall or some thinģ breaks and away we go

posted 8 days ago
Learn about how MS can impact cognitive functioning. Read more >
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