Multiple Sclerosis

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3 medium

How long did it take people to get a dignosis what was main symptoms?

Hey most of you probably all know me by now but im sam im 30 years old i first got poorly when i was 19 i woke up and could not feel my whole left side i went to hospital stayed there for a month having all kinds of tests guillian barre lymes disease Ms stroke etc MRIs came back clear bloods came back clear obv failed the tapping neuro tests and spinal tap showed abnormal amounts of high protein in spinal fluid with that they put the whole… read more

edited, originally posted 2 days ago
A MyMSTeam Member said:

Im goin to dont worry after 11 years of BS i had enough
Thank u guys for taking time to.confirm .not going cuckoo

posted about 14 hours ago
8 medium

Hyperextension at knees

My weaker leg has hyperextended at the knee for over ten years. I used to get Cortisone shots in it, every year or so. Then that stopped working, so with PT’s help, I started bracing that knee. For stability, though, my knee brace allows some substantial hyperextension so I stay up, just controls how much hyperextending I can do. Now my other knee is hyperextending. I don’t have pain in either, though used to, on the weaker side. I only walk holding onto immoveable objects, like grab… read more

edited, originally posted 2 days ago
A MyMSTeam Member said:

oh if only, Liz - danced [ballet] 6 days a week - plus even met Margot Fonteyn at Sadlers Wells [london] actually has helped my balance - when feeling… read more

posted about 21 hours ago
2 medium

My neck and shoulder have been so stiff and sore for last four days. It is like my feet when they seize. Is this normal?

posted 2 days ago
A MyMSTeam Member said:

I have lots of neck shoulder and back tension, although not originally prescribed for MS, it was prescribed when I thought I only had TMJ, I find… read more

posted about 9 hours ago
3 medium

Car Adaptations UK

Hi , I am needing information on adapting my manual car. I have read up there are changes available for gas & brake pedals, but is there anything to change the clutch pedal out there. I am in London, England. I look forward to your reply.

edited, originally posted 2 days ago
A MyMSTeam Member said:

we have these 3 point canes here in America. ? That might hinder you. May not...

posted 2 days ago
5 medium

Exploding Head?

I saw a You Tube video the other day about unusual MS symptoms. While this was not included in the video, it was in the comments. I have had this happen 3 times over the past 5 years and each time it literally scared me to pieces. Who has experienced this?

posted 3 days ago
A MyMSTeam Member said:

Yes it feels like I am going to die.

posted 3 days ago
5 medium

Spinal tap

Is there a way to talk to some one like instant message

posted 3 days ago
A MyMSTeam Member said:

Not on this format. You can on Facebook.

posted 2 days ago
6 medium

Disappearing symptoms?

Have you ever had pain free days after you have had a hassle free day?....I got news of my appointment today after a nearly a years wait and had no symptoms for hours...,I've had pain since last Feb 2018.

posted 3 days ago
A MyMSTeam Member said:

Although I'm now 70, I took my chance on trying the CBD OIL at 5 drops under tongue. Because of severe pains, I've now taken CBD tablets from Holland… read more

posted about 7 hours ago
6 medium

Disappearing symptoms?

Have you ever had pain free days after you have had a hassle free day?....I got news of my appointment today after a nearly a years wait and had no symptoms for hours...,I've had pain since last Feb 2018.

posted 3 days ago
A MyMSTeam Member said:

Always go if you have an appointment your painis a symptom and it obviously bothers you even if it isn't right at this moment you know it will be back… read more

posted 1 day ago
3 medium

Telling Prospective Employers About Your MS?

I know you don't have to, but they're gonna find out when you get medical. They could find reason to get rid of you when they do find out. In my situation...I may be leaving an employer who doesn't have a problem. So, I feel I should be honest up front. I'm aware of what rights we have legally but this is the real world and employers can do so much to screw you. Probably gonna inform them up front. But, would love to hear how you might have handled this situation.… read more

posted 4 days ago
A MyMSTeam Member said:

@A MyMSTeam Member That’s all well and good right now, but what happens if you have a relapse that makes it undeniable you have something, in other… read more

posted about 11 hours ago
2 medium

Is anyone actively on Ocrevus and if so how it is working for you?

I only started this treatment in November, it seems to be doing ok but I’m not sure if it really is doing anything.

posted 4 days ago
A MyMSTeam Member said:

I have completed a full year and 1/2 of having received Ocrevus infusions. I notice that while I still experience spasms, they are decreased in severity… read more

posted 2 days ago
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