Multiple Sclerosis

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7 medium

Any info on other medicine and side effects of the meds..

I was on tecfidera, Copaxone, Gilenya... i have lesions on spine and brain. My neruo wants me to go to a MS specialist to go on a “more aggressive” medicine.. i am 29 years old. If anyone has knowledge on any “new meds” or any stronger more aggressive meds other then the ones i have tried already. If you can explain the process and side effects and what it’s like.. thank you!

posted 2 days ago
A MyMSTeam Member said:

www.nationalmssociety.org all this information.

posted 2 days ago
1 medium

Anyone had a "clinical" diagnosis of MS?

Have any of you been clinically diagnosed with MS without having lesions on your spine or brain MRIs? My spine MRI showed no lesions and I had my brain MRI last night so don't know the results yet, but my doctor says based on my symptoms he initially thought MS, but it sounds like if I don't have lesions on my brain he isn't willing to diagnosis me with it and says he has no other clue what could be causing the symptoms. My symptoms are severe spasms and stiffening of my… read more

edited, originally posted 2 days ago
A MyMSTeam Member said:

I hope they find out what's going on with you. I was in pain for a long time
Lyrica 300 mg is good for pain. Ask your doc for that.

posted 9 minutes ago
0 medium

Has anyone heard about stem cells therapy. I want to know if anyone has tried it and if it has a risk?

posted 3 days ago
A MyMSTeam Member said:

A slippery slope and the admission fee is $65,000.00 minimum to start.

posted about 3 hours ago
5 medium

Does everyone feel miserable every day

posted 3 days ago
A MyMSTeam Member said:

I did until I asked myself why. It didn't happen that quick but I decided if this is the new norm, why feel miserable. I had to flip my personal script… read more

posted 1 day ago
5 medium

If one has MS, will one usually develop more lesions within six months if they are not on medication?

I have been given the diagnosis of possible MS. I had a brain MRI in September that showed lesions. My doctor wants me to get another brain MRI in March to see if I have any new or expanding lesions before confirming the diagnosis of MS. He is not willing to start me on any disease modifying treatment until he gets the results of the second MRI. Is it possible to have MS and not develop any new lesions within a… read more

posted 3 days ago
A MyMSTeam Member said:

Unfortunately, there is no "usual" in MS. That said, yes it's possible for there to be no new lesions in 6 months time.

posted 1 day ago
1 medium

Are you feeling increased symptoms with the colder weather?

Here is a blog on the topic: Multiple Sclerosis Symptoms and Winter Weather

https://www.msconnection.org/Blog/January-2012/...

posted 4 days ago
A MyMSTeam Member said:

@A MyMSTeam Member When I went to my PCP recently, she recommended 5,000 iu of Vitamin D3 for the winter months. I regularly take 2,000 iu.

Also, thanks… read more

posted about 17 hours ago
6 medium

Any problems with multitasking or remembering medicines?

I cannot multitask at all anymore. No.one can talk to me if im on the phone because i lose track of both. O cant remember when to take what meds without alarms to remind me.

posted 4 days ago
A MyMSTeam Member said:

I can't multitask at all any longer. I can't even read something while the TV is on! As for meds, I can remember if I'm "on schedule" but if not, I have… read more

posted 1 day ago
7 medium

Nuvigil

Hi does anyone taking this find its really hard to eat? I have no appetite

posted 4 days ago
A MyMSTeam Member said:

I take modafinil, generic nuvigil, at first was taking a whole tab and it kept me from eating and sleeping, now ive found that by cutting the tab into… read more

posted 4 days ago
1 medium

Does anyone go to their local MS Support Group?

What are the meetings like? The only thing that comes to mind is what you see on TV for AA meetings, where person stands up, introducing themselves.........Being brand new to where I live as well as MS, I was thinking attending the monthly meeting might be beneficial.

posted 4 days ago
A MyMSTeam Member said:

When I lived in Idaho I used to go all the time because we had a lot of fun and learned a lot but since I moved to Illinois I only went to 1 and stopped… read more

posted 2 days ago
5 medium

Aspirins new study

Aspirin Suppresses MS Symptoms by Preventing Loss of Regulatory T-cells, Mouse Study Shows
DECEMBER 5, 2018 Patricia Inacio, PhDBY PATRICIA INACIO, PHD IN NEWS.
Aspirin Suppresses MS Symptoms by Preventing Loss of Regulatory T-cells, Mouse Study Shows
Aspirin, administered orally at low doses, was sufficient to suppress multiple sclerosis (MS) symptoms in a mouse model of relapsing-remitting MS (RRMS) and chronic MS, a study reports.

The clinical benefits of aspirin were linked to an increase… read more

posted 4 days ago
A MyMSTeam Member said:

I take Bayer 81mg low dose for my heart had no effect on my MS.

posted about 2 hours ago
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