Multiple Sclerosis
Questions + Answers
Any info on other medicine and side effects of the meds..
I was on tecfidera, Copaxone, Gilenya... i have lesions on spine and brain. My neruo wants me to go to a MS specialist to go on a “more aggressive” medicine.. i am 29 years old. If anyone has knowledge on any “new meds” or any stronger more aggressive meds other then the ones i have tried already. If you can explain the process and side effects and what it’s like.. thank you!
Anyone had a "clinical" diagnosis of MS?
Have any of you been clinically diagnosed with MS without having lesions on your spine or brain MRIs? My spine MRI showed no lesions and I had my brain MRI last night so don't know the results yet, but my doctor says based on my symptoms he initially thought MS, but it sounds like if I don't have lesions on my brain he isn't willing to diagnosis me with it and says he has no other clue what could be causing the symptoms. My symptoms are severe spasms and stiffening of my… read more
Has anyone heard about stem cells therapy. I want to know if anyone has tried it and if it has a risk?
Does everyone feel miserable every day
I did until I asked myself why. It didn't happen that quick but I decided if this is the new norm, why feel miserable. I had to flip my personal script… read more
If one has MS, will one usually develop more lesions within six months if they are not on medication?
I have been given the diagnosis of possible MS. I had a brain MRI in September that showed lesions. My doctor wants me to get another brain MRI in March to see if I have any new or expanding lesions before confirming the diagnosis of MS. He is not willing to start me on any disease modifying treatment until he gets the results of the second MRI. Is it possible to have MS and not develop any new lesions within a… read more
Unfortunately, there is no "usual" in MS. That said, yes it's possible for there to be no new lesions in 6 months time.
Are you feeling increased symptoms with the colder weather?
Here is a blog on the topic: Multiple Sclerosis Symptoms and Winter Weather
https://www.msconnection.org/Blog/January-2012/...
Any problems with multitasking or remembering medicines?
I cannot multitask at all anymore. No.one can talk to me if im on the phone because i lose track of both. O cant remember when to take what meds without alarms to remind me.
I can't multitask at all any longer. I can't even read something while the TV is on! As for meds, I can remember if I'm "on schedule" but if not, I have… read more
Nuvigil
Hi does anyone taking this find its really hard to eat? I have no appetite
I take modafinil, generic nuvigil, at first was taking a whole tab and it kept me from eating and sleeping, now ive found that by cutting the tab into… read more
Does anyone go to their local MS Support Group?
What are the meetings like? The only thing that comes to mind is what you see on TV for AA meetings, where person stands up, introducing themselves.........Being brand new to where I live as well as MS, I was thinking attending the monthly meeting might be beneficial.
When I lived in Idaho I used to go all the time because we had a lot of fun and learned a lot but since I moved to Illinois I only went to 1 and stopped… read more
Aspirins new study
Aspirin Suppresses MS Symptoms by Preventing Loss of Regulatory T-cells, Mouse Study Shows
DECEMBER 5, 2018 Patricia Inacio, PhDBY PATRICIA INACIO, PHD IN NEWS.
Aspirin Suppresses MS Symptoms by Preventing Loss of Regulatory T-cells, Mouse Study Shows
Aspirin, administered orally at low doses, was sufficient to suppress multiple sclerosis (MS) symptoms in a mouse model of relapsing-remitting MS (RRMS) and chronic MS, a study reports.
The clinical benefits of aspirin were linked to an increase… read more
