Multiple Sclerosis

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JC virus and lumbar puncture

JC virus and lumbar puncture

My last round of bloodwork showed that i was positive for the JC Virus and my neurologist is saying that I need to have a lumbar puncture.I'm actually afraid to have a spinal tap. Has anyone else had a lumbar puncture or tested positive for the jv virus????

A MyMSTeam Member said:

The spinal tap if done correctly is a breeze.More anxiety leading up to it.

posted about 10 hours ago

Newby with MS diagnosis (1/2/19)

Newby with MS diagnosis (1/2/19)

My MS specialist told me, after I was diagnosed, that my next appointment would be at least a year away unless something urgent comes along.
How do y'all keep your head during this time? I try to read what I've found. My MS specialist answered any questions I've sent to him through his portal.
BUT I've got severe spinal stenosis (treated with cortisone shots and physical therapy), Crohn's Disease, Major Depressive Disorder, PTSD, anxiety problems, sun sensitivity from… read more

A MyMSTeam Member said:

Great answer. Support is key!

posted 4 days ago

Is skin sensitivity a symptom of MS?

Is skin sensitivity a symptom of MS?

I find that some days my forearm or hand on one side or the other is overly sensitive on my skin( even with a sleeve rubbing on it) it feels like burning

Is this an MS symptom?

A MyMSTeam Member said:

Yes! It sucks! I'm sorry you are dealing with it! I've had these issues since 2002. There are medications that help with this type of nerve pain. I'd… read more

posted 3 days ago

Podcasts

Podcasts

I work a normal 7-4pm job and regularly have my headphones in listening to podcasts on MS and overall health.

Does anyone listen to any that you would recommend?

Currently, I listen to FU MS, OMS Living Well with MS, The MS Gym and Autoimmune Wellness podcast.

It's just nice to hear discussion on what helps others and gain more info on areas I've always been curious about.

A MyMSTeam Member said:

I totally get it. When it comes to podcasts in general, I love a good story or someone to make me laugh while I'm at work.

As far as health podcasts,… read more

posted 4 days ago

VA disability

VA disability

Has anyone recieved disability for ms that served in Operation Desert Storm?

A MyMSTeam Member said:

God Bless our Military!

posted 1 day ago

Should I have the surgery?

Should I have the surgery?

As you all know MRI are necessary to track the progression of our disease. Well after my last MRI my neurologist sent my to my PC doctor who then sent me to a neurosurgeon. Since seeing the neurosurgeon he proceeds to tell me that my c5/c6 vertebrae is compressing on my spinal cord. He wants to do an ACDF on my neck, which is an Anterior Cervical Discectomy Fusion. He proceeded to tell me that if I don't have the surgery I could go paralyzed with a fall, car wreck, etc. But I am also… read more

A MyMSTeam Member said:

How is an operating room nurse for many years and we did that surgery on patients and never had anybody develop paralysis from it. If you don't know… read more

posted about 6 hours ago

Constipation???

Constipation???

What is the longest period of time, that you haven’t gone poop? Is this to taboo to talk about ?
I’m pretty sure no one will come close to my answer. I have tried Rx and otc products. Nothing helps!!!
Also has anyone had motility testing done? My GI ordered it w/o even examining me.
Thanks!

A MyMSTeam Member said:

Never.

posted 3 days ago

How do you assess leg cramps? How to treat? Can they cause lower back pain.

How do you assess leg cramps? How to treat? Can they cause lower back pain.

A MyMSTeam Member said:

I was told by a sports physio that tonic water works quickly for cramp.... probably the quinine in it (read the small print)!

posted 7 days ago

Tail bone pain

Tail bone pain

I have had tail bone pain since my diagnosis and my Neuro says it’s not related to my MS. I have seen my Primary Dr and have had an MRI and it shows nothing. Does anyone else have tail bone pain? It is so uncomfortable to sit for a long time and standing up after sitting for a while is the worst part.

A MyMSTeam Member said:

yes, I did for a long time then it went away. I go to a gym that has a hydromassage chair. Maybe that helped?

posted 1 day ago

New at this question was just asked

New at this question was just asked

Whole left side is pretty much shot now in a wheelchair doctors come to the house they come one time a month for blood and urine because of the lemtrada infusion

A MyMSTeam Member said:

I don't mind being a guinea pig if it would move the research a little faster.

posted 5 days ago
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