People living with multiple sclerosis (MS) may have a wider range of symptoms from the nerve damage caused by MS. For some, the fingers may bend or curl inward toward the palm.
“Does anyone experience their fingers curling into a ball? Or when you hold your hand out, your index finger falls down and the pinky goes up?” one MyMSTeam member asked.
Finger curling can happen in MS due to the condition’s effects on the nerves and muscles, or it may be caused by another, unrelated health issue.
If you’re living with MS, you may notice your fingers curling inward toward your wrist or palm. It may be difficult to extend or open your hand. This condition can be temporary or permanent, depending on the cause.
Members have described how involuntary hand curling affects them: “My left hand is curled up in the morning. I have to pry my fingers open, and I have a lot of itching.”
Fingers that curl inward toward the arm can make the hand take on a clawlike shape — a condition often referred to as “claw hand.”
Another member said, “Digging my nails into my palm and having the ‘claw’ issue causes me to constantly stretch my palms and fingers.”
Involuntary hand curling may affect motor function and impact how well you can use your hands. Even if you have few or no other MS-related abnormalities, the condition can severely affect your hand function.
In a study of more than 20,000 people with MS, about 60 percent had hand function impairment when they were diagnosed. Loss of sensation, strength, or motor control forced more than 40 percent of those people to make adjustments in their daily life. (Read more about the top ways MS affects everyday life.)
Difficulty using your hands is a common early symptom of MS. “My MS started with two fingers on my left hand. Gradually, all of my fingers felt a diminished sensation at the fingertips,” one MyMSTeam member said.
Peripheral neuropathy, which causes diminished or unusual sensations in your hands, can also occur with MS.
Having impaired manual dexterity (ease of using your hands) and grip strength can reduce your level of independence. You might find it harder to complete tasks of daily living, such as getting dressed, cooking, and using the toilet. A MyMSTeam member shared, “My hands will spasm into claws so badly that I refrain from driving any farther than the store.”
Working may also become more difficult if you can’t use your hands. In countries that link health insurance and employment, keeping your job is essential to maintaining access to affordable healthcare.
Any condition that affects the nerves in the hand can cause your fingers to bend inward. Involuntary hand curling can be congenital (present at birth) or develop after an injury or a health condition. People with MS can experience finger curling as a symptom of MS or an unrelated condition.
Other possible causes or risk factors of finger curling include:
Rarely, an infection such as leprosy can cause involuntary hand curling.
MS is an autoimmune disease in which your body mistakenly attacks the nerves of your own central nervous system (CNS), which includes your brain and spinal cord. People living with MS can experience different symptoms based on which part of the body is affected. If MS causes a lesion (damage) that affects how your nerves communicate with the muscles of your arms or hands, it could cause your fingers to curl up involuntarily. (Read about how MS can cause your arms to feel heavy.)
Spasticity (involuntary muscle spasms or stiffness), muscle spasms, and joint contractures are possible symptoms of MS that can cause your fingers to curl.
MS spasticity is one of the most common symptoms experienced by people with multiple sclerosis. In findings from a large U.S. survey, 84 percent of people with MS had some form of spasticity. This symptom usually involves the legs, but it can also affect the upper limbs. If spasticity occurs in the arms or hands, it could cause involuntary hand curling.
There are two types of spasticity — flexor and extensor. In flexor spasticity, tight muscles keep affected joints bent and hard to straighten. In extensor, tight muscles keep joints straight and hard to bend.
Spasticity can happen for no reason, or it can be set off or worsened by triggers such as:
Between 40 percent and 80 percent of people with MS experience muscle spasms. These involuntary contractions can last for a long time or happen briefly, causing sudden movements. If a spasm occurs in a muscle controlling your hands, it may cause your fingers to curl.
A joint contracture refers to a joint that is frozen or immobilized. Joint contractures are a common symptom of MS. Untreated spasticity can cause muscles and ligaments (bands of tissue around joints) to harden, limiting the affected joint’s range of motion.
An immobilized joint could also contribute to muscle weakness and dysfunction. If a joint contracture keeps your hand from working, the muscles can atrophy (become thinner) from the lack of use. It’s important to treat any spasticity and muscle spasms in your hand to prevent a situation where your fingers are permanently bent in a curling position.
Claw hand is diagnosed by a neurologist — a doctor specializing in treating diseases of the brain, spinal cord, and nerves. They’ll perform a physical examination to see how you bend and move your fingers and hands. They may also use an electromyography (EMG) test, which checks for nerve damage by measuring electrical activity when you move your muscles.
If your fingers are curling involuntarily, your treatment will depend on your symptoms and the cause of the abnormality. Talk with your medical team, including your neurologist, about the best strategy for you. They may start with a noninvasive approach, such as having you wear a splint or a brace, or consult a physical or occupational therapist who can recommend physiotherapy options.
If muscle spasms are causing your fingers to curl up, you may take a medication such as baclofen or tizanidine (Zanaflex) to relax your muscles.
Physical therapy and stretching exercises can help you gain strength and flexibility in your hands and fingers. An occupational therapist can teach you techniques to make daily activities — such as showering or bathing — easier, helping you remain as independent as possible.
Your physical therapist may also recommend wearing a splint or a brace to help hold your fingers straight.
Some cases of MS hand curling may benefit from treatment with onabotulinumtoxinA (Botox). This temporary muscle relaxant is used to treat involuntary hand curling and other symptoms of MS. You may also be a candidate for vascular, nerve, or musculoskeletal surgery to repair nerve injury or tendons.
MyMSTeam is the social network for people with multiple sclerosis and their loved ones. On MyMSTeam, members come together to ask questions, give advice, and share their stories with others who understand life with MS.
Have you experienced involuntary hand curling or claw hand? Do you have tips for making daily tasks easier to accomplish? Share your experience in the comments below, or start a conversation by posting on MyMSTeam.
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A MyMSTeam Member
My mother had claw hands with her MS. Now I notice that I too am getting claw hands. 😪
Happy to be alive.
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