If on a DMT, how did you choose what you're on? In collaboration with your doctor(s)?
Answer Summary
Members shared how they chose their disease-modifying therapies for MS, with most describing a collaborative process between themselves and... Read more
My neurologist and I discuss how I am doing and what I expect from what is available and my response to what I am currently on and what I have been on. You must make a decision on the possible good against the possible side effects.
I've struggled with too much wasted time. The neuro here very passive and neglectful, even ignorant. Finally got Gilenya and am so happy about the results. However, I'm dumping the neuro and have decided I can do this by myself!
My Neurologist gave me the books about the different treatments, and told me to choose the one with the side-effects I could live with, because they basically all work the same. I chose Copaxone, based on what she said, because it doesn't have the flu-like symptoms and other side effects that the other treatments had.
As soon as I was diagnosed, my doctor put me on Betaseron. No new lesions in 3 years, so I just stay on it. Doctor said oral therapy wouldn't work for me, I can't remember why not right now.
My neurologist and I discussed what would be best for me and he explained why some would not be an option. Then I did some other research to get more information then we final decided.