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just am really tired of Rebif. Neurologists does not want to change me away from Rebif.
Should I change Neurologists ?

April 25, 2013 (edited)
 · 
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A MyMSTeam Member

I was on MS meds for 3 1/2 years, and, hate to say it....but I just stopped taking them on my own, even though the dr. disagreed with me. Ended up being the best decision I could have made. Me and ANY MS meds just don't get along. I take care of myself with vitamins and great diets plus exercise.

April 26, 2013
A MyMSTeam Member

Thank you for your reply
Guess I will see what happens with things.
Pretty fed up with pricking myself, its been over three years.
Really want to change away from numerous medication
taking a lot of pills. I get there early to my appointments and
I have to wait sometimes over an hour. My thinking is why
does the call say I have to show up fiftheen minutes early
if its going to take a long time ten min consultation.
Think it sucks.
Will see what happens.
thank you RHatheatBrown

April 26, 2013
A MyMSTeam Member

Alfonso plz go by how you feel about that doc. . .If you feel rushed, your questions are not being answered and you feel you need to change doc. . .know that there are really some good docs out there.

I know when I see my neurologist there is a 45 min block of time scheduled(going on 4 yrs). I never see anyone coming or going in the office, so I dont have to worry about 2-3 ppl being scheduled at the same time (like at my pcp) and waiting forever, nor do I ever feel rushed.

This is a great site as a form of resource/enc

April 26, 2013
A MyMSTeam Member

Thank you for the replys I don't know have been on
Rebif for three years. Saw my nuero after I visited the Energency
room. It was my first full out seizyre. wasn't a tremmor.
I was so distrout. Asked for new medication nuero said
that I am doing okay with Rebif. Asked then how come
I had a seizure he said he didn't know.
Asked about oral medication he said No really fast.
Don't want to sound like a whiner, think am just confused
and a bit afraid.
Joined this site to get feedback from people who have MS.
Thank you for the comments.
Alfonso

April 26, 2013
A MyMSTeam Member

I have been wrestling with the thought of changing meds myself. Despite my wanting to go on a oral med instead of the Tysabri infusions.After a couple of discussions with my Neuro., I've decided to stick with what is working very well for me. A firm conclusive decision it is not! I do want to see in real life use the effectiveness.

April 25, 2013

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