I am forced with these decisions all the time my meds are so specialized as they are alternatives to narcotics yet classified as narcotics. Funny for synthetics. But they work on neuropathic pain without that weird fog or "high" that I despise. I'm even fought on my BP meds as I cannot take certain generics. Your doc can justify this even with Medicare a well written justification and reason and you will have the right med that will help you. I had to try a few samples a fear not so good but then magic and then the justifications and wait began. I even wrote a very nice and very detailed letter of all I have tried and went through together we won this battle. We go through it every 6 months but that is the great part about working ahead and having good doctors that know you and listen. A good help is keeping copies or squiring copies of records your reactions and the docs recommendations without this I would be a hurting puppy! Some of you are lucky and not sensitive but when you've been in aca lost vision or just feel terrible because of a pill take charge and talk to your doctor. They elwill help and understand. It will be up to you to follow up but in the long run you will feel much better. Best to to you!

Since the start of 2013 my insurance situation has been a nightmare. BCBS which had previously covered my infusions of Tysabri decided that I no longer needed to be on such an expensive treatment plan. Biogen and their Touch program actually put me on a financial assistance program so that I could stay on Tysabri for free until the mess was sorted out. Finally last Monday June 3rd I had a conference call between Biogen, BCBS, Neuros and my insurance case worker after 90 minutes they hashed it out! I havent received an infusion yet so I am hopeful that it all goes smoothly at my next appointment.

Susan sorry it took so long to get back to you, I have been taking fish oil, creatine and q10. Together with my diet my energy has greatly improved.

I had a nightmare of a time trying to get medicine for my fatigue a few years ago. My wife was in tears over fighting the insurance company for me because I was always at work. What happened was I was taking Provigil paying a copay of $50 a month then in January of the new year copay was over$800 couldn't afford that and was told it was reclassified under a new tier and I would have to pay 25% of the price. So I found Nuvigil which is used for fatigue and called the insurance to ask what tier this was under and told my copay would be$50 if on this. I got a prescription from my doctor after explaining the situation and then denied from my insurance because they said I couldn't use this for my MS. I eventually ended up on Amantadine for my fatigue which does not do as well as the Provigil did and now only pay$30 for 3 month supply. Goes to show insurance wants your money without wanting to pay it out.

@NeilsD you should contact MSLife line and explain your situation. I was on Rebif for 7+ years and they helped me with the copay and I only had to pay $50 per month. I just recently switched to Gilenya one month ago. I had my insurance company do the same where my Rebif was going to cost 25% and I definitely couldn't afford that. Good luck with your Rebif and you should definitely call MS Life Lines it made the world of difference for me and was able to continue with Rebif until I switched.