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I would like to hear from anyone who has lost total control of their bladder, or bowels, or both. Have you had either/both urostomy or colostomy surgery. If you have permanently lost either/both control, and have NOT had one/both of these surgery's, how do you care for, or what meds do you take for your loss of control? I feared leaving the house until I had both surgery's. I now have the protection and confidence to go anywhere, anytime. Please let me know if you have either/both of these… read more

June 26, 2013
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A MyMSTeam Member

Dear @Hopecrawford -- I had posted a message a couple of hours ago, but it seems to have disappeared--my computer!! Anyway, I thought that a urostomy and an ileostomy were separate, different procedures. Can you give me some info? Happy for you that it has improved your life! Thanks!

October 24, 2013
A MyMSTeam Member

@Hopecrawford So happy you had the Urostomy and are pleased with it. I too had both bladder and kidney infections quite often before the surgery. I hope it continues to give you a better quality of life. It has been almost 14 years since my Urostomy and still no problems. My MS doctor had told me that for those with loss of bladder control often also will loose bowel control within a few years, which is what happened to me. Thanks for sharing about your Urostomy. I am here if you ever want or need to talk. Hugs!

October 24, 2013
A MyMSTeam Member

I just had a urostomy(ileostomy) life is a lot easier in some respects I'm actually happy I had it done, my kidneys were being damaged due to my bladder

October 23, 2013
A MyMSTeam Member

I have not had to face this, but wonder sometimes if it will be in my future. I very much appreciate what you wrote--about having a feeling of confidence, anywhere, anytime....sounds so very good! Thank you!

June 28, 2013

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Terryville, CT

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