Hi Everyone,
I am three weeks out on my first tysabri treatment. My walking is getting worse and worse. If I stand for longer than 30 minutes,, I have horrible back spasms, and collapse. I am new at this. could this be a progression of the disease?
Hi CarolanaSongs - I am coming up on my 10th tysabri infusion. When I started, I was not able to stand for over a few minutes, walking was of balance and I was using a cane. It took about 4 months that those symptoms got better and better. I no longer need a cane, can walk up and down steps, and have good balance. Just hang in there for awhile, wishing you the best!
I have been on Tysabri for two years. I had my worse attack the first two months after I started. However, I have not had another episode since! I think you body has to adjust.
Hi Carolana,
Friday will be my 10 infusion and it does not do nearly as good as Gilenya. I am asking my Neuro if I can go back to it.
Thank you ENG that helps me a lot. It is scary the first few times.