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I Decided To Listen To My Neuro

A MyMSTeam Member asked a question 💭
Ottawa, ON

I was diagnosed in 1999. It stLDNed as relapsing remitting and just last year the category changed to secondary progressive. I was told told by my neurologist that I needed to do something aggressive to slow down the MS. He told me I needed to do chemotherapy and sent me to the chemo doctor. I guess I was scared and decided to do whatever the doctors told me and have had my first of two years worth, every three months, chemo treatment of mitoxantrone
a friend of mine has told me about LDN and… read more

September 10, 2013
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A MyMSTeam Member

LDN is all over the web. Pretty thorough documentation too. I think part of the problem might be that there is no money in it for the powers that be. I know that's a really simplified view on things but.....

If your neuro is that cut and dry about your prospects then what is the basis for your neuro's preferred route of treatment? It just makes no sense. Should you not be allowed to throw whatever you want against a disease that is going to rob you of your mobility?
Should you not be allowed to be your own mad scientist?

MS sucks enough as it is and I'm sorry to say that I think you got dealt the suckiest version of it.

September 10, 2013
A MyMSTeam Member

I have been reading the book and the literature I have receivedand I found it hard to believe that something so simple could help such a big thing however I'm starting to get excited because LDN is being found everywhere on the internet not just from a book written by a stranger but on credible MS websites as a viable possible option. So screw whatever my neurologist and my chemo Dr has to say I'm doing this I'm tired of the sickness the hair loss and the fear of what else can happen to me while on chemo.

September 10, 2013
A MyMSTeam Member

I know nothing about LDN, but I do know a bit about your rights as a patient. The doctors cannot refuse you medical attention as long as your insurance covers it. And I know from experiencing my mom going through chemo when she had cancer, that chemo has terrible effects on your body that I wouldn't wish on my worst enemy. And on another note: They have no business scaring you with their advice. It's your body and you have the final say about everything that happens to it. Even after death.
People beat the odds every day.
My advice is to work on your self-confidence. If you get a positive attitude it will help a lot to deter this disease from progressing. I know it sounds simple but it's a lot harder than you think. I once knew a woman who cured herself of cancer by adopting an unwaveringly positive mindset. I pray this helps you somehow.

March 27, 2023
A MyMSTeam Member

Thanks, cant wait!!!!!

September 10, 2013
A MyMSTeam Member

I wish you all the luck there is and then some. Keep us posted.

September 10, 2013

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