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A MyMSTeam Member asked a question 💭
Pigeon, MI

I've been on the disease modifying therapy of Tysabri for about four month, and I'm noticing a couple days after every infusion that I literally want to eat everything in site.

September 26, 2013 (edited)
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A MyMSTeam Member

I've been on Tysabri for 4months now, and I notice a hunger increase for a few days after infusion. But my neuro put me on Adderall for lack of energy and fatigue - I've actually lost 10 lbs since taking it and the hunger after infusions decreases.

October 22, 2014
A MyMSTeam Member

i do the same thing. i have my husband get me a turkey sand. beforei am finished. i am a nutritionist, think its stress related.

March 2, 2016
A MyMSTeam Member

I have to ask for something for exhaustion. Its horrible.

January 1, 2016
A MyMSTeam Member

I will have my 4th infusion of tysabri in January. I usually end up sleeping thru it. I am exhausted during it and 2 days after it. The day after I get achy. My hair is so dry and falls out. I was told by my doctor the hair thing is normal. I have started since October and change in bowel movements, like running to the bathroom (sorry!). Blood levels were drawn, urea nitrogen was low, nucleated red blood cells were .3%, monocytes were high, atypical lymph were high as well. Any help with the blood tests? I was referred to my gastro doctor. I made the appt to see him, to see what's going on, because I am told its not a side effect of Tysabri.

December 31, 2015
A MyMSTeam Member

I have been on TYSABRI for 2 years. I feel better once I get my treatment and my appetite increases usually 2 days after treatment for me.

September 26, 2013

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