We all have good and bad days, yet I always feel so alone and isolated. I want to be with groups of people more socially but then I always worry that I will have difficulty holding up my end of the friendship. I find as the years pass, I feel more alone and isolated and I have not yet figured how to reconcile this illness with the social repercussions. Anyone with suggestions?
How about calling the Nevada MS Society Chapter and seeing what kind of activities or support groups they offer. Being around people "who get it" helped me to reconcile long ago. Also, I know a trainer in Vegas who may still offer exercise classes through the MS Society. Her name is Doris Bondi.
I hope you find a way to reconcile and not feel so lonely in this disease.
Thanks @PurpleButterfly! I will definitely look into both suggestions.
I think their reaction was unfair. If they asked about it, they should have expected an answer!! As long as you didn't go on and on about it . .
Carol, wish I could answer you! I went from being totally independent to being totally dependent. Have a few close friends BUT the non-MS friend told me the other day that I go into too much detail when asked questions about illness..if person didn't want detail why ask. For example, we were talking about air travel (something I do little of) but when I did ever since got InterStim I have to be patted down...someone asked me why I have to get patted down all the time...I said it was due to InterStim which is like a pacemaker...of course another question asked...then someone (same person who asked about the patdown said Too Much Info
@DebbieAnnC, I find most people (non MSers) aren't interested in knowing more. Like you say TMI.
@carolcollom, I've lost a lot of friends. My condition reminds them of their vulnerability. I think, they think, (I'm presuming), "I don't want to see it, I'm able bodied, I have living to do, places to go, and people to see while I still can". These are people my age, in their 70's, still able bodied, can drive motor homes to Alaska, clamber in and out, and on top of the RV's with ease, and can't be bothered by handicapped people, so my invites have stopped, I'm seen as a nuisance. Enough of my rant. Hugs