Oops...I meant to send my message to Julieann.
March 15
Hi Tiffany, I signed up with this team to ask questions and to talk to more people with MS so feel free to reach out to members here. We're all dealing with similar health issues brought on by this disease. Where do you live, maybe there is a support MS support group in your location. Keep asking questions??
March 15
I am sorry to hear that you feel that way. You are not alone, we are here for you and many people feel the way you do. What kind of support are you looking for ? Maybe we can give some ideas or help you .
March 15
Do you feel alone and lacking support while living with MS?
You're definitely not alone in feeling this way. Many people with MS experience isolation and struggle to find adequate support. A MyMSTeam member shared: "Very rarely do I confide in people about personal matters. I've also narrowed down my pool of friends to Show Full Answer
Do you feel alone and lacking support while living with MS?
You're definitely not alone in feeling this way. Many people with MS experience isolation and struggle to find adequate support. A MyMSTeam member shared: "Very rarely do I confide in people about personal matters. I've also narrowed down my pool of friends to what I can now count on one hand."
Feeling isolated is actually quite common with MS, and it can be made worse by depression and anxiety, which frequently occur alongside the condition. The physical and emotional changes that come with MS can make it harder to maintain social connections. Why reaching out matters:
Social support is essential for your well-being and has been shown to help relieve depression and anxiety in people with MS. Research indicates that isolation can actually have negative health outcomes.
Sometimes people pull away because they don't understand MS and feel uncomfortable asking about it. You may need to explain how it feels to have MS and what you need from others. As one member put it: "It's OK to ask for help versus trying to do everything yourself. A lot of times people want to help if you allow them to." Finding your support system:
Many members have found connection through online communities when in-person support feels limited. One member wrote: "YOU ALL are my family. I never met any of you, but we are family, my MS family."
Consider talking openly with loved ones about what you're experiencing and what kind of support would help. If you're struggling significantly with feelings of loneliness or depression, please reach out to your doctor. These feelings are valid, but they can also improve with the right support and treatment.
March 15
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