I don't have any pain. I am very stiff with LOTS of limitations. My son, my primary caregiver, does everything for me, except feed me, sometimes he has to finish feeding me when I can't. With the Affordable Care Act, I'll be eligible for "in home health care" through my insurance company in January. This will give him a much needed break. (Thank God)

From the research I've done. Diagnosis of SPMS comes typically after about ten years of RRMS and a steady, albeit, slow decline and confirmed by MRI and clinical observations.

@Darrell Not quite sure what you mean...I don't have flare-ups, it's just there all of the time. And I tried avonex for a while, doc said why not, but it only made me sick. I'm still going to exhaust all of my options with any DMD, seeing as how spms doesn't have any other options. I'm not going down without a fight of some sort:)

@Sherri51 Please let us know the outcome! I'm spms also and going to ask my doc to put me on something, just not sure what yet.....guess I'm up for anything:) I would even be a ginnie pig.

I was diagnosed in Oct. 2011. The first neuro said Primary Progressive, but the neuro I go to now said Secondary after looking at my MRIs in depth. I'm taking Betaseron since early 2012, but I haven't had another MRI to see if there's any change. I feel like I am pretty stable. Some days are worse for walking but it depends on my mood, the weather, what I did the day before... you name it! I see my neuro again in December and am going to ask for an MRI. I'd like to know if the shots are keeping me stable.