Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 4, 2014
 · 
Be the first to react
A MyMSTeam Member

I started Gilenya after it was first approved. I tried all the injectable treatments and I hated them. I was having bad flare-ups 2-3 times a year (had to have steroid IV infusions). With Gilenya, I haven't had any bad flare-ups. For me, it pretty much was a no brainer to switch to an oral medication that has no side affects and controls my symptom's way better than the others. I also started on a Gluten-Free Diet a year ago with amazing results. Some of my disabilities that drugs didn't help and I thought were permanent are gone or lessened. I strongly recommend Gilenya, and trying a Gluten-Free Diet.

January 5, 2014
A MyMSTeam Member

I started Gilenya in February and it was my first line of treatment. I haven't had any issues at all. No side effects and have been feeling great.

January 7, 2014
A MyMSTeam Member

I had Avonex and Copaxone but hated them and saw no good results. Now am on Gilenya, but it was a long road trying to get it.

January 30, 2014
A MyMSTeam Member

‡Studies showed that GILENYA reduced the frequency of relapses by 52% in a 1-year study vs Avonex®, and by 54% in a 2-year study vs placebo. At the 1-year mark in a clinical trial, 83% of people on GILENYA were relapse-free. Of those people taking Avonex instead, 70% were relapse-free at year's end. In a separate study, 70% of the people on GILENYA were relapse-free for the entire 2 years. For the people taking placebo during that time, 46% of them stayed relapse-free.

January 12, 2014
A MyMSTeam Member

I've been on Gilenya for over a year. My MS has gone from relapsing to secondary progressive. Over the 30 years that I have had this disease I have been oncopazone, avonex and tysabri before gilenya. Tysabri was the best, but I had to go off it because I,am JC virus positive. I,don't think the gilenya has helped at all, sadly. Of,course gilenya (and all the other drugs) is for relapsing. There is nothing for progressive. If anyone is on a drug for,progressive please tell me!

January 9, 2014

Related Questions

View All
A MyMSTeam Member asked a question 💭
Chicago, IL

A MyMSTeam Member asked a question 💭
Denver, CO

A MyMSTeam Member asked a question 💭
West Covina, CA